Wheels On Down the Road

Category: Society & Politics

Discussions on politics, policies, and social issues at local and national levels.

  • The Cost of Loyalty: What It Takes to Be a Season Ticket Holder

    The Cost of Loyalty: What It Takes to Be a Season Ticket Holder

    I wasn’t planning to write this today. I sit here and look out at the dreary Minnesota sky. I know there’s a significant chance I won’t attend tonight’s Minnesota United FC match. I felt like I needed to put some thoughts down.

    Quick note: I’m part of AccessiLoons—Minnesota United FC’s first and only supporter group focused on accessibility and inclusion. However, everything I share here is based on my personal experience. It doesn’t reflect the views of the group.

    This will be the second game I’ve missed this season—and not because I’ve lost interest or stopped caring. Far from it. I’ve been a season ticket holder since 2015. That was long before the team joined MLS and before Allianz Field was even a blueprint. Supporting this team has been one of the most consistent and joyful parts of my life.

    But tonight, like many nights, I’m forced to weigh the realities of being a fan with a disability. The weather is cold, windy, and there’s a chance of rain or snow. And rain and power chairs don’t mix well.

    After last weekend’s afternoon match, my wheelchair started to malfunction on the way home. Thankfully, I made it back safely and the issue didn’t repeat itself—but moments like that stick with you.

    Every time I head out in this type of weather, there’s that voice in the back of my mind:

    • “Is my chair going to malfunction again?”
    • “Will I get stranded somewhere?”
    • “What do I do if something goes wrong?”

    It makes you cautious at times about leaving the house.

    This post isn’t just about one missed game. It’s about what it really takes to be a loyal fan in 2025—financially, physically, and emotionally.

    When Passion Meets Practicality

    I’ve always budgeted for my season tickets. When I was working full time, the yearly price increases didn’t hit as hard. Even during the pandemic, I had enough money coming in to keep my seats. Soccer was one of the few constants during an unpredictable time.

    But when the world reopened, my income didn’t bounce back as ticket prices continued to rise. Something that once felt like a justifiable splurge now feels like a financial stretch.

    Still, giving them up feels impossible. Supporting this team is part of my identity. It’s how I connect with friends. It’s where I feel community. But loyalty, especially on a fixed or limited income, comes with a price—and that price keeps going up.

    Accessibility Isn’t Just About Seats

    Being a fan with a disability adds another layer to all of this.

    Sometimes, I simply can’t attend—even when I want to. The home opener in March is always a weather gamble, and this year was no exception. That was in the evening—and I had just worked an afternoon shift at U.S. Bank Stadium. I was already cold and running low on energy. I didn’t know if I had the stamina—or the body regulation—to sit through the full match.

    As someone with limited mobility, I can’t generate much body heat. Once the sun goes down, so does the temperature—and so does my ability to safely enjoy the game.

    I made it to the match the weekend before because it was an early afternoon kickoff. It was still cold, but the sun made it manageable. That little bit of warmth made all the difference.

    And then after the issues with my wheelchair after last weeks game there’s the added layer of equipment concerns. It was enough to shake my confidence. Now, every time I head out , I have to ask:

    • What if my chair stops working?
    • What if I get stuck far from home?
    • Who do I call?
    • Will anyone be able to help?

    That kind of risk doesn’t factor into most fans’ decisions to attend a match. For disabled fans, it’s part of the mental math every single time.

    To be clear, many of these challenges aren’t unique to Minnesota United or Allianz Field. The stadium staff has generally been supportive, and there are accessible features in place. But even well-designed venues can fall short when the full spectrum of disability isn’t considered. These issues show up in stadiums across the country—and they’re often invisible to those who don’t live with them.

    Some of the most common barriers disabled fans face include:

    • Cold or extreme temperatures that are dangerous for fans with mobility or circulation limitations.
    • The distances from parking or public transit stops are long. They can feel like a marathon for those with fatigue. This is also true for those with chronic pain.
    • Crowded concourses and bottlenecks that create safety issues for wheelchair users and others needing space.
    • Ticket policies with little flexibility, even when health issues make last-minute changes necessary.
    • Energy management challenges—sometimes, it’s not about willpower. It’s about knowing your body has limits.

    The Marketplace Problem

    When I can’t attend, I turn to the SeatGeek Marketplace to resell my tickets. But that experience isn’t fan-friendly either.

    I need to list the tickets above face value to cover SeatGeek’s 10% seller fee. This is necessary to just break even. On top of that, buyers are charged another 10% fee. That’s a 20% markup just for a resale—not to make a profit, just to avoid losing money. And guess what? Most people won’t pay that.

    So now, I’m out the money, and I missed the game. It adds insult to injury.

    Lately, I’ve found myself quietly wondering what the future holds. I’m not ready to give up my season ticket membership yet. However, I’m starting to reevaluate things. The rising costs, the physical strain, the uncertainty that comes with each game—it all adds up.

    At some point, I may have to ask myself whether this version of loyalty is still sustainable for me. I love this team. I’m not going anywhere as a supporter. However, being a season ticket holder might look different down the road.

    Let’s Do Better—for All Fans

    If you work for a team, a supporter group, or even a ticketing platform, ask yourself a question. What are you doing to make sure disabled fans are fully included?

    Accessibility isn’t just about wheelchair spaces or ADA check boxes. It’s about understanding the full picture. This includes weather risks, energy limits, and malfunctioning mobility equipment. Resale policies also matter. Then, there is the emotional toll of being excluded from something you love.

    If you’re not thinking about all types of access, you’re leaving people behind.

  • Here We Go Again

    I Hate Writing About This, But I Have To

    I don’t like talking about politics on social media, and I certainly don’t like writing about it here. But this isn’t about politics—it’s about livelihood.

    I feel like I’ve written this post a dozen times. I hate that I have to keep writing about government funding, budget cuts, and restructuring. I hate that every few months, I have to sit down and explain. Once again, I must clarify why Social Security, Medicare, and Medicaid aren’t just line items on a budget. They are lifelines for millions of people, including myself.

    I wish I didn’t have to keep writing about this. I won’t stay silent until I am confident that my future is safe. The future of millions of others must also be safe for me to stay silent. Because the moment we stop speaking out, those in power believe they can do whatever they want.

    Why This Matters (Again)

    There’s talk of making deep cuts to Social Security, Medicare, and Medicaid. Do I think it’ll happen? Maybe not to the extent being proposed, but the fact that it’s even a possibility is terrifying. Medicaid/Medicare is a life line for people like me.

    If it does happen, here’s what it means for me:

    • SSDI helps cover my portion of household bills and the costs of having a service dog. I work part-time, but last year, I made about $1,600 before taxes—not nearly enough to live on.
    • Medicare covers my $50,000 power wheelchair. If they slash funding, approvals for equipment and repairs could take months. If my chair breaks down, my independence is gone.
    • Medicare and Medicaid cover my PCA (Personal Care Assistant) hours. These hours help me conserve energy. This way, I can focus on things that bring me joy. Examples of these activities are writing and spending time with friends. If they take those hours away, I risk serious health consequences. Even a reduction means needing a shoulder replacement sooner rather than later.

    And then there’s Jason, my longtime PCA, who also relies on this income. If his hours are cut, he loses a major source of financial stability. That means losing our home. It’s that simple.

    This isn’t just about me. This is about millions of people—seniors, disabled folks, low-income families—who depend on these programs to survive.

    In a recent Disability Scoop post dated March 19, 2025, they tell the story of Xavier. He has a rare genetic immune disorder. It undermines his body’s ability to fight disease. California’s Medicaid program, Medi-Cal, provides Xavier with the treatments he needs. It offers resources to his family as well. This support helps him live as normal of a life as possible.

    His mother is quoted saying:

    “It’s allowed him to go to school. It’s allowed him to be home and not living in a hospital 24 hours a day,”

    Parents of children with special health care needs aren’t the only ones raising concerns about potential cuts. Disability advocates, health care providers, budget analysts, and state lawmakers have also voiced alarm. The House proposal passed on February 25 does not explicitly call for Medicaid cuts.

    Nonetheless, it instructs the House Energy and Commerce Committee. This committee oversees the program. It needs to find $880 billion in savings over the next decade. According to experts, reaching that level of savings would be nearly impossible without reducing Medicaid funding.

    I Hate Writing About This, But I Can’t Stop

    Every time I write about Social Security or Medicare or government cuts, I feel like a broken record. I’ve covered this before:

    And yet, here we are again.

    I wish I could stop writing about this. I wish I could move on. But I can’t. The second we stop talking about it, the people in power win. The moment we get exhausted and say “Oh well, nothing we can do,” they triumph.

    What Can We Do?

    • Talk about it.
      • Even if it feels repetitive, even if it’s exhausting—keep the conversation going.
    • Contact your legislators.
      • I know, I know—Congress is a mess. But if enough of us make noise, they have to listen.
    • Get your story out there.
      • Talk to the media.
      • Write to local newspapers.
      • Use social media.

    I don’t want to write another post like this in six days, in six weeks, or in six months. But if I have to, I will.

    Because this isn’t politics. This is life.

    Read More:

  • Left Behind by the Democrats

    Left Behind by the Democrats

    Over the past few months, I’ve written extensively about the changes unfolding in our government. I’ve also discussed their impact on our communities.

    There have been drastic budget cuts to Social Security. There is also an urgent need for reform in Minnesota’s disability services. I’ve delved into the pressing issues that affect us all. I’ve also explored the challenges faced by the LGBTQIA+ community, highlighting the growing need for advocacy and support.

    Amid these discussions, I’ve felt an increasing urge to share more of my personal story. Shortly after the 2024 presidential election, I wrote a piece that I wasn’t quite ready to publish. It was raw, emotional, and an honest reflection on feeling left behind by the Democratic Party. While I shared it with a few close friends, I hesitated to make it public. I wasn’t sure how it would be received—and, frankly, I wasn’t ready for the potential backlash.

    I continue writing about the state of our nation and the impacts of policy changes on disability support services. I realize that my personal story is an essential part of this broader conversation.

    The emotions I felt in November 2024 still resonate. They affect not just me but many others too. These emotions reach those who feel disconnected, disillusioned, and left behind.

    Today, I’m ready to share this piece with you. I’ve made some edits to improve readability and included links to cited sources. My hope is that it resonates with you. I wish it sparks meaningful conversations. I also hope it encourages all of us to think critically about the direction we’re headed as a country.

    Left Behind by the Democrats

    A Personal Reflection on the Democratic Party’s Disconnect and the Fight for Our Rights

    By Levi Dokken | November 7, 2024

    I have been sitting here with a lot of feelings—sadness, anger, even rage. Part of me wanted to lash out at the people who voted for Donald Trump. To work through these emotions, I felt the need to sit down and write.

    Writing helps me release emotions. It allows me to express my thoughts. By expressing them, they don’t consume me.

    The Disconnect Between the Democratic Party and Rural America

    Donald Trump has won, and I believe it’s because the Democrats failed. They have failed the people they claim to represent. They are no longer the party of working men and women. Just look at the state of Minnesota. It went for Harris but is still a sea of red. There is only a small island of blue. The party only focuses on the areas where they need electoral votes to win the overall race.

    I grew up in a small town in Minnesota. I saw firsthand that most people in my community weren’t necessarily concerned with national politics.

    They focused more on day-to-day struggles. They were figuring out how to put food on the table. They were also finding money to cover the mortgage. They worried about what to do if their child needed braces and health insurance didn’t cover it.

    Candidates campaigned across the United States. They focused primarily on so-called battleground states and urban areas. They believed these areas would secure enough votes for them.

    Small towns across the nation increasingly feel disconnected from the Democratic Party. They believe the party has shifted its focus toward urban and coastal issues. This shift comes at the expense of rural communities.

    The Electoral System: A Barrier to Representation

    I often wonder if political candidates would pay more attention to smaller towns if votes were delegated differently. They might also focus on smaller states.

    Our current electoral system feels outdated. It resembles a relic of an age long since dead. In it, the voices of a few battleground states dictate the direction of the entire country.

    What if we had a more localized electoral college system within each state?

    For example, if each county were assigned an electoral vote, it might create a more balanced representation. The majority vote within a county would decide how that county’s electoral vote was cast. This system could offer an option to the current popular vote system that most states use to assign their delegates.

    Disappointment with Democratic Leadership

    Joe Biden announced he was running for a second term. I had a strong feeling he was going to lose.

    In 2020, he claimed he would be a transitional president. What happened to that promise? He was unwilling to even hold a primary. I was much more enthusiastic about the possibility of MN Rep. Dean Phillips entering the race. The Democrats, however, dismissed it, holding fast to the tradition that the incumbent automatically runs for re-election.

    Watching the first presidential debate, I was floored. Both candidates seemed unfit to hold the highest office in the land.

    Biden stumbled with his words and thoughts; at times, he seemed unable to keep his ideas in order. Trump wasn’t much better—he mostly rehashed grievances from 2020 without offering a clear plan for change.

    Project 2025: A Threat to Disability Rights

    Project 2025 adds to my concern. It is a plan from The Heritage Foundation. The next administration might choose to implement it.

    According to the Disability Rights Education & Defense Fund, this plan proposes changes with deep impacts on programs like Medicaid. It introduces funding caps, stricter eligibility requirements, and time limits.

    These changes could drastically reduce access to essential services for people with disabilities. Services like medical equipment, personal care attendants (PCAs), and specialist visits are crucial. They are necessary for maintaining health and independence.

    For me, Medicaid covers my specialist visits. It also covers my nearly $50,000 power wheelchair and repairs. Additionally, it covers the cost of my partner, Jason, as my PCA.

    How Do We Talk to Those Who Voted for Trump?

    How do I talk to my friends and family who voted for Donald Trump? How do I understand their choice to support someone who has assaulted women? He attempted to overturn a fair election. He also incited his supporters to storm the Capitol.

    Some of Trump’s supporters hold harmful views. However, I believe most are simply scared, misinformed, or longing for a past they believe he can bring back.

    I don’t want to cut these people out of my life, especially when many are lifelong friends or family. We can still be connected; we just may not talk about politics.

    What Can I Do Moving Forward?

    I’ve shared many things with you. The Democratic Party’s disconnect from rural America is concerning. Our electoral system has flaws. Policies like Project 2025 carry potential consequences. There’s a growing divide among friends and family. I can’t help but feel a mix of frustration and overwhelm.

    The future feels uncertain. These decisions could have long-lasting effects. They could also have life-changing effects for myself and those I care about. I find myself sitting here after writing this, asking myself, What can I do?

    As one voice out of millions, not much. But I can be part of something bigger. When others raise their voices against the incoming administration’s policies, I can stand with them. I can support the women in my life, the friends who feel vulnerable right now. I can do my part, however small, to work toward a future that protects everyone’s rights and dignity.

    Will you join me?

    Sources

  • When Budget Cuts Hit Home: How Social Security Reductions Are Impacting Us All

    Social Security Is More Than a Government Program

    Social Security isn’t just a government program; for many, it’s a lifeline.

    I’ve been receiving Social Security benefits in one form or another since I turned 18. Initially, I relied on Supplemental Security Income (SSI) while attending college from 2002 to 2008. It gave me a freedom many going through college don’t have. I was able to have a reliable source of income so I could focus higher education.

    When I entered the workforce in the winter of 2009, I found stable and reliable work. This job allowed me to completely eliminate my need for Social Security assistance.

    Later, after leaving my job at Best Buy in 2018, I transitioned to Social Security Disability Insurance (SSDI) benefits. These services are vital—not just for me but for millions of Americans who depend on them for independence and stability.

    Why I’m Speaking Up Now

    I felt compelled to write this piece after watching The Rachel Maddow Show last night. Maddow discussed the potential fallout from the latest budget cuts to the Social Security Administration (SSA). These cuts, led by Elon Musk and the Department of Government Efficiency (DOGE) under President Trump, go beyond budget trimming. Entire programs are being eliminated, putting vulnerable populations at serious risk.

    According to a recent Washington Post article, the acting head of the SSA privately admitted to certain outcomes. He said these cuts would likely lead to more mistakes. They might also result in longer delays in processing claims. The possibility of an even more frayed safety net is alarming, and I couldn’t sit by quietly.

    The Human Impact of Bureaucratic Delays

    These cuts won’t just affect new applicants—they could impact those of us already receiving benefits. Whether it’s renewing benefits, updating personal information, or resolving administrative issues, interactions with the SSA are often necessary.

    When the system is underfunded and overwhelmed, routine tasks can become significant obstacles. Delays and mistakes in processing claims can lead to missed payments, prolonged appeals, and devastating financial consequences.

    Real Stories, Real Consequences

    It might be difficult to grasp the real-world impact of bureaucratic slowdowns. This is especially true for those who have never had to navigate this system.

    When I applied for SSDI in 2018, the process was far from smooth. Even with a fully staffed administration, the hurdles were significant. Now imagine facing these challenges with fewer resources, fewer programs, and more errors.

    These challenges are not just theoretical. They are a looming reality for millions of Americans. Many Americans rely on Social Security as a cornerstone of their financial stability.

    Connect the Dots: More on Disability Rights and Advocacy

    If you want to understand more about the broader challenges facing people with disabilities, check out some of my previous posts:

    These stories illustrate the ongoing struggle to maintain and expand the rights and services many of us rely on. The fight against these latest budget cuts is just one part of a larger battle.

    A Call for Accountability and Action

    We need transparency and a commitment from our leaders to prioritize the needs of vulnerable populations. Budget cuts might look good on a spreadsheet, but their impact on human lives can be catastrophic. We should invest in essential services. This ensures that everyone—regardless of their circumstances—has access to the support they need.

    Advocacy Starts with Awareness

    The first step in fighting these cuts is raising awareness. Share your stories, support advocacy groups, and reach out to your representatives. If we remain silent, these cuts could become just another line item in a budget. The true cost would be paid by those who can least afford it.

    Sources

  • Disability Services in Minnesota: A Crisis That Needs Fixing

    Disability Services in Minnesota: A Crisis That Needs Fixing

    Disabled Minnesotans continue to struggle with long wait times for essential disability services. This is the third time this month I’ve written about issues facing disabled people, and yet, the problems persist. I felt frustrated after reading another article in the Star Tribune. I was frustrated enough to once again lend my voice to this conversation.

    I’m fortunate that I rarely face issues accessing the services I need to live a successful life. But hearing about the struggles others endure just to receive basic support is deeply upsetting. No one should have to fight this hard for the help they desperately need.

    Bureaucratic inefficiencies, workforce shortages, and inadequate funding continue to create unnecessary delays. Many disabled individuals remain stuck in limbo, unable to access services they’ve already been approved for. These delays aren’t just numbers on a report—they are real people, facing real consequences.

    Real People, Real Consequences

    Pamela Thomas, a Hutchinson, Minnesota, resident, has been waiting months for care. She qualifies for a waiver that covers personal care assistance. However, she remains without support due to workforce shortages and bureaucratic hurdles.

    The Star Tribune recently covered Thomas’ story. They reported that she remains on a waiting list. There is no clear timeline for when she will receive the care she needs. Minnesota’s Medicaid system has left thousands in similar situations. It forces people into an exhausting battle to get services they have already qualified for.

    Families across Minnesota are facing similar challenges as they wait for essential services. Many disabled individuals have had to reduce their work hours. Parents of disabled children have also needed to cut back on work. Some have even left their jobs entirely to provide necessary care. Others cannot work at all. They lack the critical supports needed to maintain employment. They are often waiting on county funding that has yet to arrive. Some rely on family and friends for assistance. Many others face increasing financial strain. They continue to wait for the services they desperately need.

    Addressing the Crisis: Key Reforms Needed

    • Streamline the Waiver System: Cutting administrative delays by simplifying paperwork and hiring more staff will speed up approvals.
    • Increase Workforce Support: Providing better pay and benefits for caregivers will reduce staffing shortages.
    • Ensure Long-Term Stability: Disability services need stable funding rather than last-minute budget decisions.

    Success Stories in Advocacy

    Advocacy works. In 2024, disability rights advocates in Kansas praised a budget provision. It was aimed at shortening wait times for disabled Kansans in need of services. This legislative effort was viewed positively.

    It represents a step towards addressing the backlog. It also ensures timely support for those in need. By organizing rallies, meeting with legislators, and sharing personal stories, they created real change. A similar movement in Minnesota could lead to the reforms we need.

    How You Can Help

    Advocacy plays a crucial role in fixing delayed disability services. Here’s how you can help:

    • Contact Your Legislators: Call or email your state representatives and demand action on disability service delays. Find your representative here.
    • Share Your Story: If you or a loved one has experienced delays, share your experience on social media.
    • Sign Petitions: Support initiatives pushing for policy changes. Consider signing petitions advocating for streamlined services.
    • Join a Local Advocacy Group: Organizations like the National Disability Rights Network are leading efforts to fix service delays.

    More on the Challenges Disabled People Face

    Sources

  • LGBTQIA+ Community Under Attack

    LGBTQIA+ Community Under Attack

    The first days of any presidency set the tone for the administration’s priorities. For President Donald Trump’s return to office, that tone has been clear—an outright attack on LGBTQIA+ rights. From executive orders restricting gender identity recognition to questionable leadership appointments, his policies are already harming individuals in my community. As someone who values equality and dignity for all, I cannot stay silent.

    Erasing Gender Identity: A Blow to Trans Rights

    One of Trump’s first executive orders has a controversial title. It is titled Defending Women from Gender Ideology Extremism and Restoring Biological Truth to the Federal Government. It mandates that all federal documents must reflect an individual’s sex assigned at birth. This effectively strips away recognition and rights for transgender Americans at the federal level.

    The real-world consequences of this policy are devastating. Euphoria star Hunter Schafer recently shared a troubling experience. Her newly issued passport listed her gender as male.

    This happened despite her legal documentation reflecting her gender as female for years. This is not just an inconvenience. It is an erasure of identity. This act could lead to further discrimination or challenges in travel, employment, and everyday life.

    A Culture War in the Arts: The Kennedy Center Controversy

    Trump’s influence extends beyond policy it reaches into the cultural fabric of the nation. Trump appointed Richard Grenell as executive director of the Kennedy Center. This appointment quickly led to Trump’s own placement as chairman of the board.

    Shortly after, the Kennedy Center canceled a Pride performance featuring the Gay Men’s Chorus of Washington. The official stance claims the decision preceded Trump’s takeover. It was due to scheduling and financial issues. Skepticism is warranted based on past social media posts by President Trump.

    Trump made a post on his social media platform, Truth Social, on February 7, 2025. This post only fuels doubts about the real motivations behind this decision.

    The message is clear: spaces that once championed inclusiveness and diversity are being reshaped to fit a restrictive, exclusionary agenda. The LGBTQIA+ community is being pushed aside, told that our voices, stories, and identities are no longer welcome.

    What Can We Do?

    Living in Minnesota, a predominantly Democratic-led state, I am fortunate to have leadership that will likely resist these harmful policies. However, that does not mean I can be complacent. National-level attacks require a national response. Here are some ways I—and anyone who shares these concerns—can take action:

    Call and Write to Federal Representatives

    State leadership may resist these policies. However, our federal representatives still play a critical role. Contact senators and members of Congress to demand that they take a stand against these executive orders.

    Support Advocacy Organizations

    Groups like the ACLU, Human Rights Campaign, and National Center for Transgender Equality are fighting these policies. They are taking legal action in court. They are challenging these policies through legal means. Donations, volunteering, and spreading awareness can help them continue their work.

    Amplify Voices of Those Affected

    The stories of transgender individuals and LGBTQIA+ artists being impacted by these policies need to be heard. Sharing their experiences on social media, engaging in discussions, and supporting LGBTQIA+ creators can help push back against this erasure.

    Vote and Encourage Voter Registration

    The 2026 midterm elections will be crucial. Ensuring that pro-equality candidates take office is one of the most effective ways to push back against harmful policies.

    Use My Platform

    Wheels On Down the Road was created to foster open discussion, and now is the time to use it. I can contribute to the national conversation by writing, sharing, and engaging with others. I can also push back against this administration’s regressive agenda.

    Final Thoughts

    The fight for LGBTQIA+ rights is far from over. The setbacks we face today will require resilience. Unity and action are also needed. Trump’s policies attempt to erase identities, silence voices, and dismantle progress. But we are still here. We are still fighting.

    I refuse to let this administration dictate the value of people in my community. Now is the time to stand up, speak out, and take action.

    Sources:

    Trump, D. J. (2025, January 20). Defending women from gender ideology extremism and restoring biological truth to the federal government. The White House. Retrieved from https://www.whitehouse.gov/presidential-actions/2025/01/defending-women-from-gender-ideology-extremism-and-restoring-biological-truth-to-the-federal-government/

    Yurcaba, J. (2025, February 10). ‘Euphoria’ star Hunter Schafer issued male passport due to Trump’s policy. NBC News. Retrieved from https://www.nbcnews.com/nbc-out/out-news/euphoria-star-hunter-schafer-issued-male-passport-rcna193212

    Wilkie, C. (2025, February 12). Kennedy Center cancels Pride performance featuring Gay Men’s Chorus of Washington. The Hill. Retrieved from https://thehill.com/homenews/administration/5154147-kennedy-center-cancels-gay-chorus-performance/

    Trump, D. J. (2025, February 7). Post on Truth Social. Retrieved from https://truthsocial.com/@realDonaldTrump/posts/113964959500715895

  • Accessible Air Travel Threatened

    Accessible Air Travel Threatened

    Accessible air travel should be a right, not a privilege. However, for wheelchair users, flying can be a nightmare due to frequent mishandling of mobility devices. Every trip comes with an underlying fear: Will my wheelchair make it in one piece?

    Unlike lost luggage, a damaged or broken wheelchair isn’t just an inconvenience. It can mean losing mobility and independence. It may even cause someone to miss out on travel altogether.

    Recently, the Department of Transportation (DOT) introduced regulations to address these issues. These rules aim to hold airlines accountable for how they handle mobility devices. However, instead of embracing these improvements, major U.S. airlines are pushing back, trying to roll back these critical protections.

    If they succeed, it won’t just affect disabled travelers today. It could also set a precedent. Such a precedent would make future accessible air travel even harder to achieve.

    What the Biden-Era Regulations Do to Improve Accessible Air Travel

    To improve air travel for disabled passengers, the DOT introduced several new requirements. Specifically, these regulations require airlines to:

    • Improve training for airline personnel and contractors handling wheelchairs.
    • Provide real-time tracking of mobility devices during loading and unloading.
    • Be held accountable for damages or mishandling of essential mobility equipment.

    The Reality of Flying as a Wheelchair User: Why Accessible Air Travel Matters

    For wheelchair users, air travel often comes with unnecessary risks. If a power wheelchair is lost or damaged, the consequences are severe. It is not just a minor setback. It can leave someone stranded without mobility. Unlike suitcases, mobility devices are custom-fitted for their users, meaning repairs or replacements can take weeks or even months.

    For this reason, I personally avoid flying whenever possible. For instance, when I traveled to Seattle for a cruise, I took Amtrak. I chose it instead of flying because I couldn’t take the chance that my wheelchair would arrive damaged. If that had happened, I wouldn’t have been able to board the ship or enjoy my trip.

    No one should have to plan their travel around whether an airline will handle their essential mobility device properly.

    A Dangerous Slippery Slope for Accessible Air Travel

    Unfortunately, if airlines succeed in overturning these regulations, it could open the door for them. They may challenge other crucial accessibility improvements. This would make an already difficult travel experience even worse for disabled passengers. Some of the improvements currently under discussion include:

    • More wheelchair-accessible airplane bathrooms, which would allow passengers with disabilities to use the restroom without unnecessary struggle.
    • In-cabin wheelchair seating would allow wheelchair users to remain in their chairs. This prevents the need to store them below the plane, where damage is likely.

    If airlines succeed in rolling back current protections, they may argue that future accessibility improvements are too costly or inconvenient. This is why it is essential to push back now.

    How You Can Take Action to Protect Accessible Air Travel

    • Stay informed. Follow updates on DOT regulations and share information widely.
    • Speak out. If you or someone you know has experienced issues with airline accessibility, share your story with me here.
    • Contact your representatives. Advocate for stronger disability rights in air travel to prevent airlines from rolling back accessibility improvements.

    Disability Advocacy Groups Fighting for Change

    Sources

    Disclosure: The feature image for this article was AI-generated. Key phrases from this post were used to create a visual representation of the topic.

  • Republican Accountability: Lost in the Trump Era

    Republican Accountability: Lost in the Trump Era

    The Transformation of the Republican Party Under Trump

    The Republican Party has undergone a dramatic transformation under President Donald Trump’s leadership. The GOP once championed conservative values such as limited government, fiscal responsibility, and national security. Now, it is defined by unwavering loyalty to one man. This shift has left many questioning whether Republican accountability still exists in the Trump era.

    Glenn Youngkin: A Case Study in Republican Silence

    One of the clearest examples of this phenomenon is Virginia Governor Glenn Youngkin. Youngkin initially positioned himself as a pragmatic Republican, someone who could appeal to both traditional conservatives and Trump’s base. However, his silence on Trump’s economic policies, which are now directly harming Virginia, proves otherwise.

    Trump’s administration has implemented policies affecting federal employment, an industry vital to Virginia’s economy. Federal job cuts threaten thousands of workers, yet Youngkin refuses to speak out against the very policies harming his constituents. His inaction shows a broader trend. Republican leaders prioritize staying in Trump’s good graces. They do this over protecting their own states. Source: Washington Post

    What Happened to Republican Accountability?

    The contrast between today’s Republican Party and the one that existed during the Watergate era is striking. When Richard Nixon was caught in a scandal, Republicans had the integrity to hold him accountable, forcing his resignation. Today, that accountability is nonexistent.

    Foreign Policy and the Shift Away From Conservative Principles

    Beyond domestic policy, Trump’s influence has significantly altered Republican foreign policy. The party that once strongly supported U.S. allies, including Ukraine, has now adopted Trump’s “America First” agenda, which often prioritizes isolationism over global leadership.

    Why Republicans Fear Standing Up to Trump

    The core reason Republican politicians refuse to challenge Trump is fear. The threat of being forced into primaries, ostracized, or even targeted by Trump’s most extreme supporters keeps them in line. It’s no longer about what’s best for the country. It’s no longer about their constituents. It’s about political survival in a party where dissent is punished.

    The Consequences of Continued Submission

    Until Republican leaders regain the courage to prioritize governance over personal loyalty, the party will remain in Trump’s shadow. The longer they wait to reclaim their independence, the more damage they will cause. This harm would affect not just their party, but the nation as a whole.

    Sources

    Disclosure: The feature image for this article was AI-generated. Key phrases from this post were used to create a visual representation of the topic.

  • Presidents’ Day and Disability: A Hidden History

    Presidents’ Day and Disability: A Hidden History

    Today’s post is a history lesson, but I hope you find it enlightening rather than dull. It’s Presidents’ Day, a holiday originally created to celebrate George Washington’s birthday on February 22. As the nation grew and elected more presidents, the holiday evolved into a day to honor all U.S. presidents.

    Presidents and Disabilities: A Lesser-Known History

    Since this blog focuses on disability, you might wonder why I’m writing about Presidents’ Day. The reason? Many past U.S. presidents have had disabilities—some visible, some hidden. Growing up, I had dreams of becoming president, thinking I would be the first disabled person to hold the office. However, history proves otherwise.

    One of the most well-known examples is Franklin Delano Roosevelt (FDR). According to Wikipedia, FDR was elected in 1932 as the 32nd president of the United States. He remains the only physically disabled president in U.S. history. FDR led the country through the Great Depression. He also guided the nation during World War II. He implemented the New Deal and reshaped the American economy.

    Before he moved into the White House, ramps were installed to make it more wheelchair-friendly. To maintain his public image, photos were taken at specific angles to minimize the visibility of his disability.

    FDR’s Disability and Advocacy

    FDR began experiencing symptoms of a paralytic illness in 1921 at age 39 and was later diagnosed with poliomyelitis. He underwent extensive therapy, including hydrotherapy at Warm Springs, Georgia. Although paralyzed from the waist down, he made great efforts to conceal his reliance on a wheelchair and leg braces. In 1938, he founded the National Foundation for Infantile Paralysis, which played a crucial role in developing polio vaccines. While most historical records attribute his condition to polio, some modern experts suggest he may have had Guillain–Barré syndrome.

    Disability advocate Hugh Gallagher argued that Roosevelt went to great lengths to appear able-bodied, stating:

    “FDR did not want the public to be aware that he was forced to use a wheelchair.”

    President Roosevelt in his wheelchair on the porch at Top Cottage in Hyde Park, NY with Ruthie Bie and Fala. February 1941.
    FDR Presidential Library & Museum photograph by Margaret Suckley CC BY 2.0 via Wikimedia Commons

    In contrast, historian James Tobin suggested that Roosevelt used his disability as a strength. He portrayed himself as a fighter and an underdog. He did this rather than becoming someone to pity.

    In one of his rare public acknowledgments of his disability, Roosevelt addressed Congress on March 1, 1945, just a month before his death:

    “I hope that you will pardon me for this unusual posture of sitting down, but I know you will realize that it makes it a lot easier for me not to have to carry about ten pounds of steel around on the bottom of my legs.”

    Franklin Roosevelt is depicted in his wheelchair in the Prologue Room of the Franklin Delano Roosevelt Memorial National Park Service photo

    Designing an Inclusive Legacy: The FDR Memorial

    Even after his passing, the National Park Service ensured his memorial was accessible. According to NPS, landscape architect Lawrence Halprin designed the FDR Memorial with wheelchair ramps. He incorporated interactive statues and Braille engravings. These features made it accessible long before the Americans with Disabilities Act (ADA) was enacted.

    Other Presidents with Disabilities

    FDR was not the only president with a disability. According to United Rehabilitation Services of Greater Dayton, many U.S. presidents had disabilities, ranging from epilepsy to learning disabilities. Here are a few:

    • George Washington (1st President, 1789-1797): Believed to have had a learning disability due to struggles with spelling and grammar.
    • Thomas Jefferson (3rd President, 1801-1809): Reportedly had a learning disability despite being a principal author of the Declaration of Independence.
    • James Madison (4th President, 1809-1817): Had epilepsy but played a key role in drafting the U.S. Constitution.
    • Abraham Lincoln (16th President, 1861-1865): Battled severe depression and possibly had Marfan Syndrome.
    • Theodore Roosevelt (26th President, 1901-1909): Suffered from visual impairment due to a boxing injury.
    • Woodrow Wilson (28th President, 1913-1921): Had a learning disability, possibly dyslexia, and suffered a stroke while in office.
    • John F. Kennedy (35th President, 1961-1963): Experienced chronic back pain and is suspected to have had a learning disability.
    • Ronald Reagan (40th President, 1981-1989): Developed hearing impairment due to an on-set accident during his acting career.
    • Bill Clinton (42nd President, 1993-2001): Has high-frequency hearing loss and wears hearing aids.

    A Legacy of Strength and Resilience

    Throughout American history, presidents with disabilities have faced unique challenges, yet they persevered to lead the nation. Their stories highlight the importance of resilience and show that disabilities do not define a person’s potential.

    This Presidents’ Day, as we honor the leaders of our country, let’s also recognize the barriers they overcame. Disability should never be seen as a limitation—it is simply one aspect of the diverse experiences that shape great leaders.

  • How Policy Changes Could Impact Disability Support Services

    How Policy Changes Could Impact Disability Support Services

    I have been receiving support services through personal care assistant (PCA) hours for over twenty years. Over this time, I have worked with many different PCAs, each bringing unique skills and compassion to their work.

    My first PCA, Colleen, was a warm face every morning and evening. She helped to keep my apartment looking clean. She made sure I had plenty of food in the refrigerator. I could easily grab it after coming home from a long day of college classes. She had been a PCA for a long time and knew the ins and outs. She even helped me find resources to cover medical supplies. Until then, I had been paying for these out of my own pocket.

    Towards the end of our two years working together, I was finishing my two-year degree. We grew close and became good friends. I don’t keep in touch as much as I’d like. However, I think about her from time to time. I thank her for everything she did.

    My current PCA, Jason, and I came to work together in a unique way. He has been a longtime friend and now current partner. When I could no longer afford to cover the cost of my apartment, I asked him to move in.

    He saw firsthand the struggles I had keeping staff. He was there when a PCA quit on her first day. She quit because she saw we had a cat. We explicitly told the agency that any person who works in my home must be okay with cats.

    Jason was there when the staff would show up late or not show up at all. He often filled in without being paid. I was getting frustrated with the issues. He needed the extra cash. So I asked him to officially work with me, and we’ve been doing great ever since.

    These experiences highlight the invaluable role PCAs play in my life. They make it possible for me to live independently. I can focus on the things that truly matter. These hours have allowed me to live independently and use my energy in meaningful ways.

    The Importance of Personal Care Assistants (PCAs)

    Before I had PCA hours, I had to complete a vast majority of the housework on my own. For most people, this is not a huge problem, but for me, some of these tasks can be extremely draining.

    The Challenges of Daily Tasks Without PCA Support

    Take laundry, for example. Before I had PCA services, I had to drag the laundry basket to the washing machine down the hall. Then, I struggled to load a basket’s worth of clothes into the machine. Once it was finished, I had to stand next to the machine to unload the clothes into the dryer. The easiest part was getting them out of the dryer and back into the basket. Then came the long drag back to my apartment. By the time I got everything folded and put away, I was ready for a nap. Many times, I would get the clothes washed and dried. However, they might have to wait to be folded. I had more pressing tasks, such as getting groceries for the following week.

    Out of all the household tasks, grocery shopping was by far the hardest. This was before online ordering and home delivery became widely available. I would have to take the paratransit to the local grocery store. I could only purchase what I could carry on my lap. If paratransit was not an option, I would wheel my manual wheelchair to the store.

    By the time I got back home, I was exhausted. I would often develop blisters on my hands. This happened even though my dad gave me a pair of fingerless gloves to use.

    My family would sometimes make the hour-and-a-half drive to see me. Most of the time, they would also take me to the store. This allowed me to buy a large supply of food.

    Now that I have PCA hours, I worry about losing them. If they were cut back, it would significantly impact my overall well-being. However, I do not foresee this happening for me.

    Unlike many who rely on PCA hours, my PCA lives in the home with me. This means I do not have to worry about whether they will show up. I do not have to worry if the agency can find someone to fill in. This is important if the usual staff is unavailable.

    The Impact of Immigration Policies on Caregiver Availability

    A Minnesota Star Tribune article highlights a critical issue. Minnesota relies on immigrant and refugee workers to provide essential care. These individuals care for those with disabilities, chronic illnesses, and the elderly.

    A 2024 study by the Minnesota Department of Employment and Economic Development states an important fact. Over 20% of direct support professionals in the state are immigrants.

    The demand for home health aides and personal care assistants is projected to grow by 25% over the next decade. However, workforce shortages persist. High turnover rates exceeding 50% annually contribute to these shortages.

    Many current and potential caregivers are immigrants. They come from countries such as Liberia, the Democratic Republic of the Congo, Ethiopia, and Somalia. Restricting new entrants from these regions could severely impact the availability of qualified personnel in the caregiving sector. It would worsen the existing workforce crisis. This could leave thousands of individuals without critical support. Many individuals would not receive essential care for disabilities, chronic illnesses, and the elderly.

    These direct support professionals are indispensable in delivering daily assistance and ensuring the well-being of vulnerable populations. However, recent federal immigration policies, including increased deportations and the suspension of refugee resettlement, pose significant challenges to this workforce.

    Medicaid Waiver Cuts and the Risk to Independent Living

    Another Minnesota Star Tribune article highlights concerns among Minnesotans with disabilities. These concerns are about proposed state budget cuts to Medicaid waivers. These waivers are essential for funding services that enable individuals to live independently. They cover costs for personal care assistants, specialized equipment, and transportation not typically covered by insurance.

    Governor Tim Walz has proposed capping annual inflationary increases for these waivers at 2%. This is a significant reduction from the current 6% growth rate. This proposal aims to address a looming budget deficit projected for 2028. The shortfall is partly due to higher-than-anticipated Medicaid spending on disability services.

    However, advocates argue that such cuts could compromise the quality of care. They could force individuals into institutional settings. This would reverse progress made in supporting independent living for people with disabilities.

    “My brother sacrificed his limbs to the caregiver shortage”

    Real-Life Consequences of the Caregiver Shortage

    These staffing shortages are more than just an inconvenience for those who rely on these services. They can be a matter of life and death. In the fall of 2022, Dennis Prothero lost his legs due to a shortage of care workers.

    Paralyzed from an accident in 2004, Dennis required assistance with daily living skills. In the summer of 2022, he lost his vital caregiving support. As a result, he was forced to spend 24 hours a day in his wheelchair. The constant pressure led to severe sores. These sores went untreated due to the lack of available staff. Ultimately, this resulted in an emergency amputation to stop the spread of infection. Dennis’s older sister, Gayle King, told the Minnesota Star Tribune, “My brother sacrificed his limbs to the caregiver shortage.”

    Unhappy Ending

    Tragically, this was not the end of Dennis’s story. He was weakened by surgery and a prolonged hospital stay. Then he contracted bacterial pneumonia and COVID-19. These illnesses ultimately claimed his life in early December 2022. He was 68 years old.

    Dennis was more than just a statistic. He was a son, a brother, a father, and a friend to many, including me. We never met in person. However, we chatted online over the years. We bonded over our shared love of photography, cars, and our service dogs from Can Do Canines.

    What Can Be Done to Address These Issues?

    If these changes at both the state and federal levels were enacted, I would not likely be affected. I have live-in staffing. I do not rely on any of the programs the governor is looking to trim. However, I know that countless friends and loved ones could be affected.

    Changes are necessary to ensure financial sustainability. However, those changes should not come at the cost of some of our most vulnerable citizens.

    Sources