Tag: Life with a Disability

Personal experiences, challenges, and triumphs of living with a disability, from daily routines to navigating societal barriers.

  • Every Day, Not Just May: A Reflection on Mental Health Awareness

    Every Day, Not Just May: A Reflection on Mental Health Awareness

    Why We Need More Than a Month

    May is Mental Health Awareness Month. It’s a time when you’ll see posts, ribbons, infographics, and campaigns reminding us to check in on ourselves and others. And don’t get me wrong—that’s important. But mental health isn’t something we should only be aware of one month a year.

    It’s something we should acknowledge, support, and talk about every single day.

    My Mental Health Journey

    Mental health struggles don’t come with a calendar notification. They don’t wait until May to make themselves known. For some of us, they’re lifelong companions—sometimes silent, sometimes loud, sometimes manageable, sometimes utterly overwhelming.

    I’ve been living with anxiety and depression for as long as I can remember. But for years, I didn’t have a name for what I was feeling. I didn’t know that the heaviness, the racing thoughts, and the sudden and intense emotional dips weren’t just “personality quirks.” They were not something to tough out. I finally received the right diagnosis when I became an adult and sought professional help. More importantly, I got the right support. Medication and counseling made a world of difference for me. But even with treatment, mental health isn’t something that just gets “fixed.” It’s something I continue to manage, day by day.

    You Can’t Always See It

    Here’s the thing: you can’t always see it.

    People with mental health challenges often look “fine” on the outside. Smiling. Working. Cracking jokes. Showing up. We become masters of masking. We hide the pain, the fear, and the spiral. Society hasn’t always been kind to people who show those things. But just because someone looks okay doesn’t mean they are.

    Some days, I genuinely feel good. I feel steady, grounded, even joyful. Other days, something as small as a smell can affect me. A song or an old photo may send me down a dark tunnel I wasn’t expecting. It can take everything I have to claw my way back out.

    Coping Isn’t Always Healthy

    And let’s talk about coping mechanisms. I joke about my “coffee addiction”—and yes, my relationship with caffeine is a little… complicated. But beyond the laughs, I’ve also had a much more serious struggle with alcohol. For a while, I used it to cope. To numb. To silence the noise. But through therapy and intentional choices, I’ve worked hard to build a healthier relationship with alcohol. (Still working on the coffee one, though. Baby steps.)

    Why I’m Sharing This

    I’m not sharing this for pity. I’m sharing this because mental health is still so misunderstood, so stigmatized, and so often invisible. I want to be part of normalizing the conversation. Because the more we talk about it, the more we make space for people to feel less alone.

    So if you’re struggling right now—silently or not—please know you’re not alone. You matter. You deserve support. And there’s absolutely no shame in seeking help.

    Mental health awareness doesn’t end when May does.

    It’s an everyday thing. Let’s keep talking.

    Mental Health Resources

    If you or someone you love is struggling with mental health, please know that help is available. You are not alone.

    Emergency Help (24/7):

    • 988 Suicide & Crisis Lifeline: Call or text 988 or chat at 988lifeline.org Free, confidential support for people in emotional distress or crisis.
    • Crisis Text Line: Text HELLO to 741741 Trained crisis counselors available anytime, anywhere in the U.S.
    • National Domestic Violence Hotline: Call 1-800-799-7233 or text START to 88788 thehotline.org

    Support for Specific Communities:

    Ongoing Mental Health Support:

  • Out of My Mind and Back Into My Memories

    Out of My Mind and Back Into My Memories

    Why This Story Hit So Hard

    About a month ago I watched the movie Out of My Mind on Disney+. Afterward, I decided to go back and read the book. I’m so glad I did. You know what they say books are always better than the movies.

    Even though I saw the movie a month ago, Sharon Draper’s words brought back memories. I hadn’t expected those memories to resurface. They still ache a little, even years later.

    Before I go any further, I want to be clear. These are my thoughts, my feelings, and my recollections of what happened. Memory is slippery. Emotions can tint the edges. So take what I say with a grain of salt. Know that this is how it felt to me. Sometimes that’s the most honest thing a person can offer.

    Melody’s Story, and Mine

    In the story, Melody is a brilliant girl with cerebral palsy. She uses a communication device, has a sharp wit, and knows more than most people give her credit for. A highly emotional moment in the book occurs when her classmates are selected for a big trip to Washington, D.C.

    Melody is supposed to go too. But things don’t go as planned. Melody doesn’t get to go. Reading that part felt like looking in a mirror.

    The Trip I Didn’t Get to Take

    When I was in seventh grade, my school organized a class trip to Washington, D.C. just like Melody’s. I was excited. Nervous. Hopeful. I pictured myself standing in front of the Lincoln Memorial. I imagined exploring the Smithsonian. I saw myself laughing with my classmates in a hotel room late at night. I imagined the memories we’d make, the stories I’d have to tell. But then came the catch.

    The school told me I couldn’t go unless one of my parents, or another adult, came along as my personal aide. They said it was about ensuring my safety and meeting any personal needs I might have during the trip. But here’s the thing: by that age, I could dress, bathe, feed, and toilet myself without assistance. The only support I might’ve needed was help navigating long distances. Someone could push my wheelchair when my stamina ran low from all the sightseeing. It wasn’t really about safety.

    It was about discomfort. Their discomfort. They didn’t want to figure out how to include a disabled student. They weren’t willing to make accommodations. And they certainly didn’t offer to help cover the cost of bringing someone to support me. So their solution? Exclude me instead.

    Much like Melody in the story, I was deeply disappointed. But disappointment was nothing new to me. I’d grown used to it whether it came from friends, family, or the world at large. I rarely showed it, because by then, I had learned to hold it in. I knew expressing it wouldn’t change anything.

    Still, I remember one conversation vividly. One evening, I was riding in the car with my aunt. I told her how much I wanted to go on that trip. I don’t remember where we were headed, but I remember the weight of wanting so badly to be included. She even talked about trying to help cover the cost, or going with to aid me, to make it possible.

    But in the end, it just wasn’t possible. My parents couldn’t afford the added expense. So that was it. No Washington, D.C. No trip. No adventure. Just me, left behind at school while my peers made memories without me.

    My class explored the nation’s capital while I stayed behind. I sat in a classroom with the small group of students who didn’t go. I felt forgotten. Left out. It felt unfair. I had wanted that experience so badly. I wanted to be part of the stories they’d tell when they came home. I didn’t want to be the kid they left behind.

    Bitterness and Bucket Lists

    Even now, nearly 30 years later, it still leaves a slightly bitter taste in my mouth. I still haven’t made it to Washington, D.C. But it’s on my bucket list. When I finally get there, I’ll be standing tall. You better believe I’ll be giving a big, proud, proverbial middle finger to every staff member. This is for every teacher who once thought I didn’t belong. Because guess what? I made it anyway.

    Melody’s Story Is Our Story

    Reading Out of My Mind brought all of that back. Melody’s story isn’t just hers. It belongs to many of us. We have had to fight just to be included. Others take these things for granted. Her heartbreak is our heartbreak. But so is her strength, her wit, and her refusal to be underestimated.

    That’s the power of stories like this one. They don’t just show the world as it is they help us imagine the world as it should be.

    A World Where Everyone Belongs

    I believe in that world. One where we don’t put conditions on belonging. One where we assume competence instead of questioning it. One where disabled children aren’t left behind because adults decided their inclusion was too inconvenient or too expensive.

    If you haven’t read Out of My Mind, I encourage you to. Yes, it’s a work of fiction. However, it captures something deeply real. It portrays the inner life of a young person who is so often spoken about instead of spoken to. Melody’s voice may be artificial in the technical sense, but her story rings powerfully human.

    Let’s build a world where no one has to prove they deserve to be part of the story.

    Let’s listen.

    Let’s include.

    And let’s never stop imagining, and creating, a better way forward.

  • From Poster Child to Invisible Adult

    From Poster Child to Invisible Adult

    Growing Up Disabled in a World Obsessed with Cute

    When I was a kid, people thought I was adorable. I had chubby cheeks, a bright smile, and Cerebral Palsy.

    That last part, my disability, somehow made me even more “inspiring” in the eyes of strangers. I was the kind of kid who showed up in brochures for community events. I got extra attention from teachers and therapists. I drew “Aww”s and “God bless him”s at the grocery store.

    A young boy with curly hair and large glasses smiling brightly at the camera, wearing a yellow and black striped collared shirt with a yellow boutonnière pinned to it.
    Me at my most joyful—missing teeth, oversized glasses, and a smile bigger than my face. The kind of photo people loved to “aww” over.

    Disabled kids are cute. Society loves a feel-good story, especially one that comes in a pint-sized package with leg braces and a cheeky grin.

    But here’s the thing: I grew up.

    And when I did, the attention disappeared.

    I’m 41 now. Still disabled. Still Cerebral Palsy. Still me. But somewhere along the way, I stopped being cute. And in the eyes of the world, I stopped being seen.

    Adult man with curly hair wearing clear glasses, a gray hoodie, and a denim vest, sitting indoors and smiling slightly in a well-lit coffee shop.
    The same person you saw in the childhood photos. Different glasses, different decade. Same Cerebral Palsy. Same me.

    The “Cute Factor” and Conditional Compassion

    We follow a cultural script with disabled kids. We shower them with support, attention, and affection. This continues as long as they remain children. The moment they grow into adulthood, that same compassion starts to dry up. Public programs disappear. Services shrink. Opportunities narrow. Even social attitudes shift from admiration to discomfort, from celebration to suspicion.

    As a child, I had access to therapies, educational supports, and community resources. There were coordinated efforts to help me grow, thrive, and participate. But as I got older, it felt like the message became: Well, good luck now you are on your own.

    I went from being someone people wanted to help… to someone people tried not to make eye contact with.

    The Adult Disability Cliff

    This isn’t just my story. This situation is a systemic reality known in advocacy circles as the services cliff. The support sharply drops off when a disabled person ages out of pediatric care. It also decreases when they leave school-based programs or children’s nonprofit funding.

    We don’t talk about this enough. Adults with disabilities face higher rates of poverty, unemployment, isolation, and inadequate healthcare. But we rarely make the news unless we’re breaking Paralympic records or fighting for survival in a viral video.

    Why? Because disabled adults don’t make people feel warm and fuzzy in the same way disabled kids do. We complicate the narrative. We ask harder questions. We don’t fit into feel-good stories with easy endings.

    Kids vs. Adults

    As a Child with a DisabilityAs an Adult with a Disability
    School-based physical, occupational, and speech therapyTherapy often not covered or comes with strict insurance limitations
    Individualized Education Plans (IEPs) with legal accountabilityNo IEPs for college or jobs—just ADA “reasonable accommodations”
    Access to special education teachers and support staffLimited access to job coaches; shrinking supported employment resources
    Pediatricians and specialist trained in children with disabilitiesFewer adult physicians familiar with complex disability care
    Early intervention programs (birth–age 3)Virtually no equivalent early adult transition support
    Summer camps, social groups, and extracurricular inclusion programsSocial isolation is common; few adult-focused adaptive recreation spaces
    Case managers to help coordinate servicesAdults often navigate a confusing system alone
    Parent advocates built into the systemAdults are expected to self-advocate
    Medicaid waivers often easier to access for minorsAdult services require complex eligibility and waitlists
    Positive visibility in media and fundraisersAdults rarely portrayed unless overcoming “against all odds”

    The shift is more than inconvenient; it’s structural. We build systems around disabled children to help them grow. Then we tear those systems down just when adulthood starts demanding more from us: jobs, independence, healthcare navigation, stable housing.

    The message? “You’re on your own now.”

    From Three Times a Week to Barely At All

    When I was a kid, I went to physical therapy three times a week.

    I’ll be honest—I wasn’t a huge fan of it at the time. I was a kid. I didn’t want to stretch or do strength exercises. I wanted to be outside or reading or literally anywhere else. But looking back, I realize just how lucky I was.

    Those sessions helped me build strength, coordination, and confidence. They gave me tools to move through the world.

    Now, as an adult? I can count the number of PT sessions I’ve had in the past ten years on both hands.

    It’s not that I stopped needing physical therapy. Cerebral Palsy didn’t magically go away when I turned 18. But getting PT as an adult is a whole different game. There has to be a specific reason or goal that meets insurance criteria. It’s not about maintaining mobility. It’s about justifying the expense.

    Even when you do qualify, you’re often limited to a small number of sessions. Once they’re gone, they’re gone. Never mind if your muscles get tighter again, or if your mobility starts slipping. There’s no regular check-in. No ongoing plan. Just a shrug and off you go.

    I get that insurance companies want to save money. But regular PT for adults isn’t just about recovery it’s about maintenance. It’s about keeping people functioning and independent for as long as possible.

    I’ll be the first to admit it’s not always easy to schedule therapy sessions as an adult. I remember when I was taking classes in Hutchinson. Just finding time between classes and homework to go to PT was a challenge.

    Now, I have to fight for every step literally and figuratively.

    The Economic Angle: Preventative Care Saves Money

    What gets overlooked in all this is how short-sighted the system is. Ongoing PT and accessible health support aren’t just about comfort they’re about prevention. If adults with mobility disabilities had regular maintenance care, many could avoid injuries. Falls, surgeries, and hospital stays could also be avoided later.

    But instead of investing a little now, we let people deteriorate, and then spend far more reacting to preventable problems. It’s penny-wise and pound-foolish. And people like me pay the price with our bodies.

    The Emotional Cost: Losing Visibility

    There’s a strange grief in realizing you once mattered more to the world.

    As a child, I had a whole team cheering me on therapists, teachers, volunteers, neighbors. Now, I’m often just trying to prove I deserve the bare minimum. It’s not just about services. It’s about dignity. About being seen.

    When I was younger, people called me brave. Now, they call me an expense.

    Still Here. Still Worthy.

    I’ve included a photos. Me as a child, me as an adult. The disability in both pictures is the same. The person? Still me.

    But the world doesn’t treat those two versions of me the same way.

    This isn’t a plea for pity or applause. It’s a call to remember that disabled children become disabled adults. We don’t stop needing support, visibility, and respect just because we’ve aged out of a marketing campaign.

    The cute kid didn’t disappear. He just grew up.

    And he still matters.

  • Somewhere Wet and Windy

    Somewhere Wet and Windy

    The Walk Begins

    This is your on-the-ground correspondent reporting live from the storm zone—also known as my neighborhood sidewalk.

    It all began innocently enough. I had just finished my coffee. I was strolling home with Surley, my loyal service dog. A light drizzle began to fall. No big deal. We’re Minnesotans. We’ve seen worse.

    A city street in Minneapolis with dark storm clouds rolling in, a USPS mailbox in the foreground.
    Earlier in the day—ominous clouds overhead, but still totally convinced I’d make it home dry.
    Spoiler: I did not.

    The Downpour + Tornado Siren

    But then—cue the dramatic music—the sky opened up. Torrential rain. We ducked under shelter. It let up. We continued. It poured again. We found more cover. The storm played with us like a cat with a string.

    And just when we were four blocks from home, the tornado siren wailed.

    Where was it located? Right on the very street we were walking. Rain pelted our faces. The wind howled. The siren blared as if it were auditioning for the lead role in a disaster film.

    Naturally, as the siren screamed, I started picturing The Wizard of Oz. But instead of Dorothy and Toto, it was Levi and Surley getting swept up and carried off to the land of Oz. I wasn’t wearing ruby slippers. However, I was absolutely ready to take down a witch with a soggy sock. I had some Midwestern passive aggression ready as well.

    The real star of this cinematic experience? Surley. Calm. Steady. Unbothered. For a dog who usually finds storms a bit spooky, he handled it like a seasoned storm chaser.

    I told him repeatedly how proud I was. He just powered through the wind and the rain. He glanced at me as if to say, “Chill, I’ve got this.”

    Coming Home

    We made it home drenched, slightly stunned, and still laughing.

    Surley celebrated with zoomies.

    I dried us off like we’d just crawled out of a creek. Which, in a way, we had.

    A yellow Labrador retriever lying on a carpet, still damp from the rain, resting with his eyes half-closed.
    Post-storm status: one brave boy, thoroughly toweled and dramatically resting on the living room floor.
    (Zoomies: complete. Dignity: mostly intact.)

    Your Turn

    Have you ever been caught in a surprise storm with your pet?
    Did they channel inner courage… or cartoon chaos?

    Tell me your best soggy, windy, or siren-filled story in the comments.

  • Redrawing the Map

    Redrawing the Map

    This post grew out of a writing class assignment. We were asked to draw a map of my childhood neighborhood. Then we had to tell a story about it. What emerged was not a single story. It was an exploration of childhood, disability, and friendship. It also examined how we redraw our lives over time.

    When I was drawing the map for class, I realized how small my world was. We were supposed to share a story about our neighborhood. However, I didn’t have any that came to mind. At least, not in the way the assignment intended. What came to mind instead was pain and heartache.

    The sharp smell of pencil lead clung to my fingers as I traced the roads of my childhood. On the page, the map looked simple. Two gravel roads crossed like stitches. There was a handful of houses. The sagging fence line was where the horses would run and buck. But as I drew, the map whispered back something I hadn’t expected.

    The map was small.

    Not just in miles and landmarks, but in meaning. It made me realize how small and limited my world had been.

    I rarely left home. The only times I did leave were to go to school or church (at least until I got confirmed). Occasionally, I went to the theater, the skating rink, or a cousin’s house for a sleepover. Those trips stopped once we hit junior high. I really interacted with neighbors only when we rode horses around the section.

    Living in the country and having a disability made it difficult to have friends. The isolation wasn’t just about miles of gravel roads. It was about feeling cut off from the world of other kids. Even when classmates lived nearby, the distance between us felt bigger than geography. It was the distance of difference, of not quite fitting into their games, their rhythms, their conversations.

    I remember when I was in school, there were only a few places I could sit during lunch. We had long, picnic-style tables, and because of the wheelchair, I was limited to the ends. I didn’t want to be a burden to anyone. So, I’d often pick the same table. It was the one closest to the end of the cafeteria line. It became its own quiet ritual — not quite belonging, not quite invisible, always on the edge of things.

    Still, there were moments of connection that broke through.

    One afternoon in first or second grade, I played baseball in the yard of the twin girls. They lived down the other country road and were also in my grade. I sat on the grass to make it easier to get around because wheelchairs and lawns don’t mix well. I don’t remember much else from that day. I recall the sun on our backs. There was a quiet sense of belonging, even if only for a moment.

    I remember having a couple of my own friends over — both times because it was my birthday. The first time was in fifth grade when I “invited” the pastor’s son from church. He came over for a sleepover. I still shared a room with my sister then. That night, my mom decided it was time for my leg stretches. They usually forgot them but remembered at the worst moment. I was hopeful they’d skip it. But no. I lay there trying not to cry in front of my friend. My mom stretched my legs, sometimes painfully. He didn’t stay long the next morning. For my birthday, he gave me a black-and-white picture of a dragon to color in with markers. I think I colored it, though I don’t remember for sure.

    Then there was the classmate who lived next door for a while. We’d been friends since kindergarten. We were the kind of friends who came and went as their family moved away. Then they came back, and after a while, moved away again. When they came back briefly in eighth grade, I remember trying harder. I made a point to talk with them and to help. It was a small act of making amends. I pulled away in fifth grade because I thought they were “cramping my style.”

    The second birthday friend came when I was a senior in high school. We got out of school early one Friday. We wandered around downtown. This was a small thing to most people, but huge for me. I was so used to the school bus taking me straight home. We went to the Video Box. I rented my first R-rated movie because I was now eighteen. I think it was American Pie. My friend gave me a finger skateboard to assemble. It was a cool alternative. A real skateboard would’ve been too hard for me to use. I held onto it for years. Looking back, I realize he was probably one of the only “real” friends I had in high school.

    These two friends? I haven’t spoken to them in years. If you tracked them down and asked, they might not remember the details. But I do.

    Looking back, I see that while I often felt on the margins, I wasn’t as alone as I thought. Those small moments — a game of baseball, an awkward birthday sleepover, a walk downtown — were lifelines. They didn’t erase the loneliness, but they punctured it, leaving small but lasting marks. They taught me that connection doesn’t have to look like the movies or the friendships I envied. It can be quiet, brief, imperfect — and still matter.

    And as much as the map of my childhood was small, the map of my adult life is much broader. I have a small core group of friends. There are fewer than a dozen of them. But they are the kind of people who show up when it matters.

    When my last living grandma was dying of cancer, they were there. They helped with rides and supported me during the funeral. When my first service dog, Dempsey, was diagnosed with third-degree AV block, they ensured I got him to his vet. They made sure he attended his appointments. They also made sure that I ate. When he passed away unexpectedly, one of them drove nearly eight hours round-trip to bring me home from a camping trip in northern Minnesota.

    Back then, I thought the boundaries of my world were fixed. I believed the small map I lived in was all I’d ever know. But maps, I’ve learned, can be redrawn.

    My childhood map may have been small. However, my adult map is wide enough to hold friendship. It also encompasses grief, loyalty, and love. Sometimes, the best stories come from the places we outgrow. These stories also come from the people we learn to carry with us.

    Author’s Note:
    I share this piece with the hope it resonates. It is for anyone who has ever felt on the margins. Yet, they still found meaning in imperfect connections. It’s about small worlds, quiet resilience, and the way we carry the past as we grow into larger lives.

  • More Than Qualified, Still Overlooked: One Disabled Worker’s Truth

    The Harsh Reality of Disability and Employment

    Finding a job is hard. Finding one as a person with a disability? Often twice as hard—and half as fair.

    Despite decades of progress, people with disabilities still face enormous hurdles in the workforce. From inaccessible interviews to discrimination that’s harder to prove than to feel, the disability employment gap remains stubbornly wide. As of 2024, only about 22.5% of people with disabilities are employed, compared to 65.8% of non-disabled people, according to the U.S. Bureau of Labor Statistics. And now, with looming threats to Social Security programs, the urgency to find stable, fulfilling work is greater than ever.

    Balancing Purpose and Pay

    I have been looking for more financially stable work for quite some time. I love what I do right now. However, I need something more reliable regarding the amount of money I can bring in.

    I am also looking for jobs that will feed my soul. They should not drain my emotional and physical energy. I know that might seem like taking the easy way out. Throughout my life, I’ve learned that being in draining positions harms my overall well-being.

    Many people with disabilities face the same struggle. They try to balance physical or mental health needs with the demand for financial stability. It’s not just about wanting a job. It’s about finding one that doesn’t push you past your limits.

    A 2022 study by Accenture found a significant correlation. Companies that embraced disability inclusion were twice as likely to outperform their peers in profitability. They also had improved productivity. Yet, many of us never get the chance to show what we can do.

    Living on the Edge of Uncertainty

    I am in a rather unique situation. I do receive SSDI. This allows me to be more selective about the work I do. I am also aware of the changes the current administration is trying to make to Social Security.

    You should look for alternate sources of income. This is important in case there is a stoppage in the SSDI checks you receive. According to the Social Security Administration’s 2024 Trustees Report, the trust fund is projected to be depleted by 2033. Reforms are necessary to avoid depletion.

    The Job Search: A Loop of Silence and Rejection

    In the past six months, I have submitted countless applications. Most of the time, I don’t hear anything back. Then there are rare instances where I get to interview. I don’t know if I suck at the interview process. I don’t know if it’s because I am a wheelchair user. Maybe it’s because I have a service dog. Usually, after that first interview, I get the dreaded response. It says: “After careful consideration, we have decided to move forward with other candidates.” Their experience more closely aligns with our current needs.

    Statistically, this kind of experience isn’t unusual. According to the National Organization on Disability, many employers still have biases. They also have inaccessible workplaces and a lack of inclusive practices. These conditions make it harder for disabled applicants to be hired or promoted. These invisible barriers reinforce the frustrating reality many disabled job seekers face. You can be qualified, capable, and enthusiastic. Yet, you might still be overlooked.

    My Work History: Then and Now

    I have been working on and off since I was 14 years old. During the summer of 1998, I had my first taste of what a job would be like. I was taking summer classes in the Twin Cities thanks to the generosity of my aunts. They had an amazing friend who worked as a head chef at a hotel near the airport. They were willing to give me a chance at what I can now only describe as something of an internship. Arrangements had been made for me to “work” one day a week. Despite this, I still had to interview with the head chef. I was scared and nervous and excited all at the same time.

    My first official summer job was at the Swift County Recorder’s Office in the summer of 2000. It was an exciting experience, even though the job was simple: scanning documents to be digitized. It gave me more responsibility and a little bit of spending money. I worked so much that I burned through the allotted funds that paid my wages. The following summer, I had a similar job with the county’s Soil and Water Conservation Office. Again, it was a simple job but taught me a lot about responsibility.

    These early jobs weren’t glamorous, but they helped shape my work ethic. I was learning to navigate a world. This world was not designed with me in mind, like it wasn’t for many other young adults with disabilities. According to the National Organization on Disability, workplace biases persist. Inaccessible environments remain. Additionally, a lack of inclusive practices continues to be a major roadblock to employment for disabled individuals.

    Campus Jobs, First Steps, and New Lessons

    The summer after my senior year of high school, I didn’t work. Not because I couldn’t get a job, but because I wanted one last summer of freedom before college. During college, I held a few on-campus jobs. While living in Hutchinson, I worked part-time as a tutor. To be honest, I don’t even remember what subject I tutored. However, I do remember getting a letter from the county about not reporting the $65 I earned. I had no idea I needed to at the time.

    At Augsburg, I had a variety of jobs. I helped the campus LGBTQ+ organization with their website and digital advertising. I was also a tour guide for the admissions office. My focus was often giving tours to prospective students with mobility challenges.

    A Decade of Retail—and Then, the Curtain Closed

    After graduation, I was fortunate to land a temp job with a downtown Minneapolis staffing agency. I was surprised they hired me, but I guess when you’re a temp, they take whoever they can get. That role lasted about eight months, and then I was unemployed again. I submitted many applications back then. It felt like a lot. I rarely heard anything back.

    Eventually, I applied at Best Buy. They had a location at the Mall of America. It was easy for me to get to. I’d never worked retail in my life and barely shopped at Best Buy before. I remember the hiring process. There was a phone interview. Then there was a group interview (my first ever). I felt completely out of place during it. I didn’t say much because I didn’t know what to say. Somehow, I said enough to move on to the final interview and land the job.

    Originally, it was supposed to be a seasonal role, but they decided to keep me on part-time after the holidays. I continued working at Best Buy for nearly 10 years. Over time, I shifted into different departments and eventually landed a full-time position. It was nice having PTO and a consistent paycheck.

    Unfortunately, it wasn’t meant to last. In the summer of 2018, Best Buy closed that location. I considered applying to the nearby Richfield store and even had a few interviews there, but it felt different. They seemed more hesitant to hire someone with my “unique abilities.” It didn’t work out, but I received a decent severance package and took a much-needed three-month break.

    That hesitation? It mirrors what many disabled workers experience. Too many hiring processes contain a subtle skepticism. There’s a belief that accommodating a disabled employee is more trouble than it’s worth. But data and my own personal experience contradicts that. Studies show that providing accommodations often costs less than $500, and the long-term benefits—employee retention, morale, and diversity—are invaluable.

    I did a training video in 2017 while I was with Best Buy on this exact issue. My general manager and I were featured in a video about workplace accessibility. The video highlighted how simple accommodations can make a huge difference in supporting disabled employees. These include clear communication, flexibility, and simple adjustments to schedules and the layout of an eight-foot section. For example, the management made the point-of-sale terminal more accessible. This change helped me ring out customers in my department.

    All they had to do was remove a section of shelving to lower the register. It didn’t just work for me—it worked for everyone. While the video is now unlisted, it remains one of the proudest accomplishments of my time there and is still featured on my LinkedIn profile as a reminder of what true inclusion can look like in action

    Where I Am Now—and Where I Want to Go

    In the fall of 2018, I landed my current role at U.S. Bank Stadium. I love the staff I work with—it’s a great environment. Things have changed a lot since returning post-COVID, but I don’t see myself leaving anytime soon. That said, hours have been very limited since the pandemic. I need something that provides more financial stability.

    In 2021, I met Amy B., a personal trainer specializing in inclusive fitness. She created Fit with Amy B to provide training for people of all abilities. I improved my own health through her program. She also brought me on to help behind the scenes making everything run smoothly. She saw the benefit of having people with disabilities not only workout with her. They also worked with her to bring greater awareness to healthy living, regardless of your abilities. I truly loved what I did for Amy. I have yet to find another job that offered the same level of flexibility. It also provided fulfillment.

    Unfortunately, SSDI barely covers my monthly expenses. It doesn’t give me the flexibility to do the things I enjoy, like traveling or going out with friends. Living on a fixed income can be incredibly limiting.

    According to the National Organization on Disability, many people with disabilities face financial insecurity. They also encounter systemic bias and physical barriers. These obstacles prevent equal access to job opportunities.

    And yet, studies by Accenture show that companies prioritizing disability inclusion perform well. They are also twice as likely to be innovative.

    The Bigger Picture: You’re Not Just Hearing My Story

    This isn’t just my story. It’s the story of many people in the disability community. They want to work. They are ready to work. They constantly run into walls—both visible and invisible. It’s time to break those walls down.

    Call to Action

    We need employers, policymakers, and communities to step up. Employers must rethink hiring practices to eliminate bias and prioritize inclusion. Lawmakers need to protect Social Security and invest in programs that support people with disabilities, not strip them away. And for those reading this: listen to our stories. Share them. Advocate for change. Because no one should be shut out of opportunity simply because society hasn’t caught up to our potential.


    Sources:

  • The Cost of Loyalty: What It Takes to Be a Season Ticket Holder

    The Cost of Loyalty: What It Takes to Be a Season Ticket Holder

    I wasn’t planning to write this today. I sit here and look out at the dreary Minnesota sky. I know there’s a significant chance I won’t attend tonight’s Minnesota United FC match. I felt like I needed to put some thoughts down.

    Quick note: I’m part of AccessiLoons—Minnesota United FC’s first and only supporter group focused on accessibility and inclusion. However, everything I share here is based on my personal experience. It doesn’t reflect the views of the group.

    This will be the second game I’ve missed this season—and not because I’ve lost interest or stopped caring. Far from it. I’ve been a season ticket holder since 2015. That was long before the team joined MLS and before Allianz Field was even a blueprint. Supporting this team has been one of the most consistent and joyful parts of my life.

    But tonight, like many nights, I’m forced to weigh the realities of being a fan with a disability. The weather is cold, windy, and there’s a chance of rain or snow. And rain and power chairs don’t mix well.

    After last weekend’s afternoon match, my wheelchair started to malfunction on the way home. Thankfully, I made it back safely and the issue didn’t repeat itself—but moments like that stick with you.

    Every time I head out in this type of weather, there’s that voice in the back of my mind:

    • “Is my chair going to malfunction again?”
    • “Will I get stranded somewhere?”
    • “What do I do if something goes wrong?”

    It makes you cautious at times about leaving the house.

    This post isn’t just about one missed game. It’s about what it really takes to be a loyal fan in 2025—financially, physically, and emotionally.

    When Passion Meets Practicality

    I’ve always budgeted for my season tickets. When I was working full time, the yearly price increases didn’t hit as hard. Even during the pandemic, I had enough money coming in to keep my seats. Soccer was one of the few constants during an unpredictable time.

    But when the world reopened, my income didn’t bounce back as ticket prices continued to rise. Something that once felt like a justifiable splurge now feels like a financial stretch.

    Still, giving them up feels impossible. Supporting this team is part of my identity. It’s how I connect with friends. It’s where I feel community. But loyalty, especially on a fixed or limited income, comes with a price—and that price keeps going up.

    Accessibility Isn’t Just About Seats

    Being a fan with a disability adds another layer to all of this.

    Sometimes, I simply can’t attend—even when I want to. The home opener in March is always a weather gamble, and this year was no exception. That was in the evening—and I had just worked an afternoon shift at U.S. Bank Stadium. I was already cold and running low on energy. I didn’t know if I had the stamina—or the body regulation—to sit through the full match.

    As someone with limited mobility, I can’t generate much body heat. Once the sun goes down, so does the temperature—and so does my ability to safely enjoy the game.

    I made it to the match the weekend before because it was an early afternoon kickoff. It was still cold, but the sun made it manageable. That little bit of warmth made all the difference.

    And then after the issues with my wheelchair after last weeks game there’s the added layer of equipment concerns. It was enough to shake my confidence. Now, every time I head out , I have to ask:

    • What if my chair stops working?
    • What if I get stuck far from home?
    • Who do I call?
    • Will anyone be able to help?

    That kind of risk doesn’t factor into most fans’ decisions to attend a match. For disabled fans, it’s part of the mental math every single time.

    To be clear, many of these challenges aren’t unique to Minnesota United or Allianz Field. The stadium staff has generally been supportive, and there are accessible features in place. But even well-designed venues can fall short when the full spectrum of disability isn’t considered. These issues show up in stadiums across the country—and they’re often invisible to those who don’t live with them.

    Some of the most common barriers disabled fans face include:

    • Cold or extreme temperatures that are dangerous for fans with mobility or circulation limitations.
    • The distances from parking or public transit stops are long. They can feel like a marathon for those with fatigue. This is also true for those with chronic pain.
    • Crowded concourses and bottlenecks that create safety issues for wheelchair users and others needing space.
    • Ticket policies with little flexibility, even when health issues make last-minute changes necessary.
    • Energy management challenges—sometimes, it’s not about willpower. It’s about knowing your body has limits.

    The Marketplace Problem

    When I can’t attend, I turn to the SeatGeek Marketplace to resell my tickets. But that experience isn’t fan-friendly either.

    I need to list the tickets above face value to cover SeatGeek’s 10% seller fee. This is necessary to just break even. On top of that, buyers are charged another 10% fee. That’s a 20% markup just for a resale—not to make a profit, just to avoid losing money. And guess what? Most people won’t pay that.

    So now, I’m out the money, and I missed the game. It adds insult to injury.

    Lately, I’ve found myself quietly wondering what the future holds. I’m not ready to give up my season ticket membership yet. However, I’m starting to reevaluate things. The rising costs, the physical strain, the uncertainty that comes with each game—it all adds up.

    At some point, I may have to ask myself whether this version of loyalty is still sustainable for me. I love this team. I’m not going anywhere as a supporter. However, being a season ticket holder might look different down the road.

    Let’s Do Better—for All Fans

    If you work for a team, a supporter group, or even a ticketing platform, ask yourself a question. What are you doing to make sure disabled fans are fully included?

    Accessibility isn’t just about wheelchair spaces or ADA check boxes. It’s about understanding the full picture. This includes weather risks, energy limits, and malfunctioning mobility equipment. Resale policies also matter. Then, there is the emotional toll of being excluded from something you love.

    If you’re not thinking about all types of access, you’re leaving people behind.

  • Here We Go Again

    I Hate Writing About This, But I Have To

    I don’t like talking about politics on social media, and I certainly don’t like writing about it here. But this isn’t about politics—it’s about livelihood.

    I feel like I’ve written this post a dozen times. I hate that I have to keep writing about government funding, budget cuts, and restructuring. I hate that every few months, I have to sit down and explain. Once again, I must clarify why Social Security, Medicare, and Medicaid aren’t just line items on a budget. They are lifelines for millions of people, including myself.

    I wish I didn’t have to keep writing about this. I won’t stay silent until I am confident that my future is safe. The future of millions of others must also be safe for me to stay silent. Because the moment we stop speaking out, those in power believe they can do whatever they want.

    Why This Matters (Again)

    There’s talk of making deep cuts to Social Security, Medicare, and Medicaid. Do I think it’ll happen? Maybe not to the extent being proposed, but the fact that it’s even a possibility is terrifying. Medicaid/Medicare is a life line for people like me.

    If it does happen, here’s what it means for me:

    • SSDI helps cover my portion of household bills and the costs of having a service dog. I work part-time, but last year, I made about $1,600 before taxes—not nearly enough to live on.
    • Medicare covers my $50,000 power wheelchair. If they slash funding, approvals for equipment and repairs could take months. If my chair breaks down, my independence is gone.
    • Medicare and Medicaid cover my PCA (Personal Care Assistant) hours. These hours help me conserve energy. This way, I can focus on things that bring me joy. Examples of these activities are writing and spending time with friends. If they take those hours away, I risk serious health consequences. Even a reduction means needing a shoulder replacement sooner rather than later.

    And then there’s Jason, my longtime PCA, who also relies on this income. If his hours are cut, he loses a major source of financial stability. That means losing our home. It’s that simple.

    This isn’t just about me. This is about millions of people—seniors, disabled folks, low-income families—who depend on these programs to survive.

    In a recent Disability Scoop post dated March 19, 2025, they tell the story of Xavier. He has a rare genetic immune disorder. It undermines his body’s ability to fight disease. California’s Medicaid program, Medi-Cal, provides Xavier with the treatments he needs. It offers resources to his family as well. This support helps him live as normal of a life as possible.

    His mother is quoted saying:

    “It’s allowed him to go to school. It’s allowed him to be home and not living in a hospital 24 hours a day,”

    Parents of children with special health care needs aren’t the only ones raising concerns about potential cuts. Disability advocates, health care providers, budget analysts, and state lawmakers have also voiced alarm. The House proposal passed on February 25 does not explicitly call for Medicaid cuts.

    Nonetheless, it instructs the House Energy and Commerce Committee. This committee oversees the program. It needs to find $880 billion in savings over the next decade. According to experts, reaching that level of savings would be nearly impossible without reducing Medicaid funding.

    I Hate Writing About This, But I Can’t Stop

    Every time I write about Social Security or Medicare or government cuts, I feel like a broken record. I’ve covered this before:

    And yet, here we are again.

    I wish I could stop writing about this. I wish I could move on. But I can’t. The second we stop talking about it, the people in power win. The moment we get exhausted and say “Oh well, nothing we can do,” they triumph.

    What Can We Do?

    • Talk about it.
      • Even if it feels repetitive, even if it’s exhausting—keep the conversation going.
    • Contact your legislators.
      • I know, I know—Congress is a mess. But if enough of us make noise, they have to listen.
    • Get your story out there.
      • Talk to the media.
      • Write to local newspapers.
      • Use social media.

    I don’t want to write another post like this in six days, in six weeks, or in six months. But if I have to, I will.

    Because this isn’t politics. This is life.

    Read More:

  • Left Behind by the Democrats

    Left Behind by the Democrats

    Over the past few months, I’ve written extensively about the changes unfolding in our government. I’ve also discussed their impact on our communities.

    There have been drastic budget cuts to Social Security. There is also an urgent need for reform in Minnesota’s disability services. I’ve delved into the pressing issues that affect us all. I’ve also explored the challenges faced by the LGBTQIA+ community, highlighting the growing need for advocacy and support.

    Amid these discussions, I’ve felt an increasing urge to share more of my personal story. Shortly after the 2024 presidential election, I wrote a piece that I wasn’t quite ready to publish. It was raw, emotional, and an honest reflection on feeling left behind by the Democratic Party. While I shared it with a few close friends, I hesitated to make it public. I wasn’t sure how it would be received—and, frankly, I wasn’t ready for the potential backlash.

    I continue writing about the state of our nation and the impacts of policy changes on disability support services. I realize that my personal story is an essential part of this broader conversation.

    The emotions I felt in November 2024 still resonate. They affect not just me but many others too. These emotions reach those who feel disconnected, disillusioned, and left behind.

    Today, I’m ready to share this piece with you. I’ve made some edits to improve readability and included links to cited sources. My hope is that it resonates with you. I wish it sparks meaningful conversations. I also hope it encourages all of us to think critically about the direction we’re headed as a country.


    Left Behind by the Democrats

    A Personal Reflection on the Democratic Party’s Disconnect and the Fight for Our Rights

    By Levi Dokken | November 7, 2024

    I have been sitting here with a lot of feelings—sadness, anger, even rage. Part of me wanted to lash out at the people who voted for Donald Trump. To work through these emotions, I felt the need to sit down and write.

    Writing helps me release emotions. It allows me to express my thoughts. By expressing them, they don’t consume me.

    The Disconnect Between the Democratic Party and Rural America

    Donald Trump has won, and I believe it’s because the Democrats failed. They have failed the people they claim to represent. They are no longer the party of working men and women. Just look at the state of Minnesota. It went for Harris but is still a sea of red. There is only a small island of blue. The party only focuses on the areas where they need electoral votes to win the overall race.

    I grew up in a small town in Minnesota. I saw firsthand that most people in my community weren’t necessarily concerned with national politics.

    They focused more on day-to-day struggles. They were figuring out how to put food on the table. They were also finding money to cover the mortgage. They worried about what to do if their child needed braces and health insurance didn’t cover it.

    Candidates campaigned across the United States. They focused primarily on so-called battleground states and urban areas. They believed these areas would secure enough votes for them.

    Small towns across the nation increasingly feel disconnected from the Democratic Party. They believe the party has shifted its focus toward urban and coastal issues. This shift comes at the expense of rural communities.

    The Electoral System: A Barrier to Representation

    I often wonder if political candidates would pay more attention to smaller towns if votes were delegated differently. They might also focus on smaller states.

    Our current electoral system feels outdated. It resembles a relic of an age long since dead. In it, the voices of a few battleground states dictate the direction of the entire country.

    What if we had a more localized electoral college system within each state?

    For example, if each county were assigned an electoral vote, it might create a more balanced representation. The majority vote within a county would decide how that county’s electoral vote was cast. This system could offer an option to the current popular vote system that most states use to assign their delegates.

    Disappointment with Democratic Leadership

    Joe Biden announced he was running for a second term. I had a strong feeling he was going to lose.

    In 2020, he claimed he would be a transitional president. What happened to that promise? He was unwilling to even hold a primary. I was much more enthusiastic about the possibility of MN Rep. Dean Phillips entering the race. The Democrats, however, dismissed it, holding fast to the tradition that the incumbent automatically runs for re-election.

    Watching the first presidential debate, I was floored. Both candidates seemed unfit to hold the highest office in the land.

    Biden stumbled with his words and thoughts; at times, he seemed unable to keep his ideas in order. Trump wasn’t much better—he mostly rehashed grievances from 2020 without offering a clear plan for change.

    Project 2025: A Threat to Disability Rights

    Project 2025 adds to my concern. It is a plan from The Heritage Foundation. The next administration might choose to implement it.

    According to the Disability Rights Education & Defense Fund, this plan proposes changes with deep impacts on programs like Medicaid. It introduces funding caps, stricter eligibility requirements, and time limits.

    These changes could drastically reduce access to essential services for people with disabilities. Services like medical equipment, personal care attendants (PCAs), and specialist visits are crucial. They are necessary for maintaining health and independence.

    For me, Medicaid covers my specialist visits. It also covers my nearly $50,000 power wheelchair and repairs. Additionally, it covers the cost of my partner, Jason, as my PCA.

    How Do We Talk to Those Who Voted for Trump?

    How do I talk to my friends and family who voted for Donald Trump? How do I understand their choice to support someone who has assaulted women? He attempted to overturn a fair election. He also incited his supporters to storm the Capitol.

    Some of Trump’s supporters hold harmful views. However, I believe most are simply scared, misinformed, or longing for a past they believe he can bring back.

    I don’t want to cut these people out of my life, especially when many are lifelong friends or family. We can still be connected; we just may not talk about politics.

    What Can I Do Moving Forward?

    I’ve shared many things with you. The Democratic Party’s disconnect from rural America is concerning. Our electoral system has flaws. Policies like Project 2025 carry potential consequences. There’s a growing divide among friends and family. I can’t help but feel a mix of frustration and overwhelm.

    The future feels uncertain. These decisions could have long-lasting effects. They could also have life-changing effects for myself and those I care about. I find myself sitting here after writing this, asking myself, What can I do?

    As one voice out of millions, not much. But I can be part of something bigger. When others raise their voices against the incoming administration’s policies, I can stand with them. I can support the women in my life, the friends who feel vulnerable right now. I can do my part, however small, to work toward a future that protects everyone’s rights and dignity.

    Will you join me?


    Sources

  • Squishy Boy: A Love Letter to My Gentle Dog

    Squishy Boy: A Love Letter to My Gentle Dog

    The other day, I wrote a poem called Ghost in the Wiggles about Dempsey and his lingering spirit. As I reflected on Dempsey’s story, I realized Surley deserved his own tribute, too. Unlike Dempsey, Surley is my “squishy boy”—not because of his size, but because of his soft and tender spirit. He’s a dog who needs the world to be gentle, who thrives on a calm voice and a soft touch.

    Living with a soft dog like Surley has been both a lesson and a gift. He’s taught me to breathe before the storm, to find patience when frustration blooms. This poem, Squishy Boy, is a love letter to his delicate heart. It is also about the journey we’ve shared to understand each other.

    Squishy Boy

    You are my squishy boy.
    Not fat—just tender.
    Your blonde hair, soft as your heart.

    You are my squishy boy.
    I must handle you with care—
    a soft touch, a soft voice.
    Sometimes, that’s not easy.

    You are my squishy boy.
    In the beginning, frustration bloomed.
    The TV volume rose and fell—
    a ghost in the remote.

    I fought with it,
    tried to keep the world gentle,
    so the noise wouldn’t hurt you.

    I wasn’t mad at you—
    but you thought I was.

    You are my squishy boy.
    You sought safety,
    curled up with him, not me.
    It hurt. It still hurts.
    I was only trying to protect you.

    You are my squishy boy.
    I learned early on—
    sudden sounds could startle you,
    prickle your gentle spirit.

    I only wanted to protect you,
    but you misunderstood my frustration.

    You are my squishy boy.
    You have taught me to temper my rage,
    to breathe before the storm.

    You are my squishy boy.
    You must always carry something—
    from first light to bedtime.

    Your turtles, soft and worn,
    are never far from your mouth.
    They give you strength,
    a comfort you can hold.

    You bring them to bed when I let you,
    tucking them close as we curl up,
    safe and snug together.

    You are my squishy boy.
    You crave reassurance,
    always near me, on me.
    At first, it felt like too much, suffocating,
    but now, it feels sweet.

    I am your rock.
    I am your safe space.
    And you—
    you are my squishy boy.

  • A Ghost in the Wiggles: A Heartfelt Poem of Love and Loss

    I don’t often write poems, but some mornings, the words find me.

    This morning, I sat next to Surley. I was sipping my coffee and preparing to table at the Can Do Canines open house. A familiar ache settled in. I glanced up at the picture of Dempsey.

    There he was, sitting on the dock. His deep, soulful eyes stared into my very soul. I realized he remains a ghost. He will forever haunt me. He lingers in the quiet moments of my day.

    Surley and Dempsey share so much: their wiggle butts, their playful spirits, the way their eyes hold entire stories. And yet, they are so different—one chocolate, the other yellow, each with a unique heartbeat. I needed to put these feelings somewhere, to capture the love and the loss, the comfort and the haunting.

    So, I wrote this poem.

    A Ghost in the Wiggles

    You are chocolate; he is yellow—
    But you are both dogs
    With shockingly similar eyes,
    Though so different.

    Yours, a deep golden amber,
    His, a rich, soulful chocolate.
    When he looks at me,
    I see you in the shadows of his gaze.

    I love you.
    I love him.

    You craved morning belly rubs,
    A ritual of joy.
    He only offers his belly
    Because he knows it brings me closer to you—
    A bridge to the boy I lost too soon.

    I love you.
    I love him.

    I look at him, and I see you.
    I know he is not you—
    He is his own dog,
    But still, I see you.

    Your silly face, your wiggle butt.
    I see you when he zooms around the house
    After a long day’s work,
    When he rests his head on my lap,
    Looking up at me.

    I love you.
    I love him.
    He is here, and you are not.

    You are a ghost,
    Haunting the corners of my mind,
    An invisible chain,
    Forged by how you left so abruptly,
    Binding me to you,
    Never letting go.

    I love you.
    I love him.

    Will your ghost haunt me forever?
    Even with him here,
    The heartache lingers,
    Popping up in the most unexpected,
    Unusual ways.

    I love you.
    I love him.
    You are gone.
    He is here.

    You both have that same wiggle butt,
    But unlike you,
    He must always have something in his mouth—
    As if the comfort of a toy or a bone
    Keeps him steady,
    Helps him reach your confident stride.

    I love you.
    I love him.

    You were bold, hard-headed,
    Needed a firmer hand,
    Met the world with unflinching eyes.

    He is squishy, tender,
    A softer heartbeat in this home.
    Crumpling at the slightest hint of an upset dad,
    Looking up for reassurance,
    Needing to know he’s doing it right.

    I love you.
    I love him.

    When I first got upset with him,
    I thought I broke him.
    I thought we weren’t meant to be,
    Because he shut down,
    So unlike you—
    You, who always pushed back,
    Certain, strong, sure.

    He is not you.
    But in his own way,
    He is exactly who he needs to be.

    I love you.
    I love him.

    Through him and around him,
    Your spirit still dances—
    A ghost in the wiggle.

  • A Lifetime of Love

    She remembered what she used to be like, and it was nothing like she was now. Lying in her hospice bed, her bones heavy against the thin mattress, she glanced over at Janis. Curled on the couch, soft snores drifted beneath the gentle rustle of pages, the worn paperback threaten to slip from her grasp. The lamp’s warm glow bathed them both, casting soft amber shadows on the walls, a thin bubble of light holding back the dim edges of the room.

    Seventy-five years. A lifetime together. She had never met another queer couple who had shared so much time. They weren’t lucky—no, not lucky. Lucky implied chance. They had worked for this. Even though neither of them had the best childhoods, they had built the kind of home they always dreamed of. 

    Over the years, they’d helped so many children find the love they themselves had needed. There had been moves, planning, saving, countless hours of discussion and paperwork. They were committed to do whatever needed to be done to help these children have the best chance of success. Through sleepless nights and boundless love, they had held on, hand in hand, refusing to let the world pull these children’s lives apart.

    As she thought back on the memories of the past her eyes grew heavy, the hum of the room melting into the slow, gentle rhythm of her heartbeat. Each thump seemed to draw her deeper, unraveling the present and letting memory rush in like a tide. 

    She could feel the edges of the world softening, as if the house itself was urging her to rest, to let go with the same gentleness they had shown every child who came through their door. Memories swept in carrying her back to the start of their story—the first glance, the first touch, the first moment when the world had shifted beneath her feet.

    The First Spark

    They met in college, back when the world was less forgiving. She had been studying social work, determined to make a difference for kids like her, while her soon-to-be wife pursued a degree in special education. The first time she saw her, they were in a crowded general education class, the kind where the professor barely glanced up from their notes.

    Her soon-to-be wife stood at the front of the room, shoulders squared, her knuckles pale against the wooden edge of the podium as her voice rose above the low hum of shuffling papers and half-hearted whispers. She was challenging the professor, demanding accommodations so that every student could participate equally. The room had gone still, the weight of her words settling over them. The professor’s dismissive response did nothing to deter her. Instead, her resolve only seemed to sharpen, a quiet defiance woven into every word.

    After class, while others slipped out through the back doors, she found herself moving forward, weaving through desks and backpacks to catch up to her. Her pulse thrummed in her ears, but the feeling in her chest told her this was important. She introduced herself, expressing her admiration for how bravely she had stood up to “the man.” The words had been meant as a joke, a thin veil of humor over a deeper truth.

    Her soon-to-be wife’s name was Janis, a nod to both Janis Joplin and Janis Ian. The moment she introduced herself to Janis, she felt a quiet thrill—a shared love of music layering itself over the spark of admiration she already felt. It seemed fitting that someone with a name echoing such powerful voices would find her own and use it so boldly.

    Janis had smiled then, a gentle, genuine expression that softened the remnants of her earlier frustration. What had struck her most wasn’t just the courage to speak up, but the quiet certainty beneath it—a sense that doing what was right was simply a given. They lingered in the empty classroom, talking as if the world had folded away, leaving only the two of them.

    That moment became the first of many. Conversations bloomed in quiet corners of the library, over long walks across campus, and in shared spaces where time seemed to stretch just for them. What began as a spark of admiration grew into a rhythm of companionship—study sessions and shared meals, standing together at protests, finding comfort in silence as much as in words. Their friendship deepened, roots entwining through shared hopes and the slow, steady discovery of all the ways their lives fit together.

    Over time, those moments became the foundation of something neither of them had expected but both had craved—a love built on the simple, powerful truth that they were better together. It was a certainty she had carried with her since childhood, a steady light in the dark corners of her past.

    Roots in Rocky Soil

    Even as a child, she had felt it—that quiet truth, unshakable and real. The girl who sat in front of her in homeroom always left her speechless, her stomach fluttering whenever she turned around to pass a note or share a smile. She had known she was different, a lesbian, from a young age, and she never felt ashamed of it. But her parents were deeply religious, and when they pieced together the truth, they cast her out and into foster care before her tenth birthday.

    The foster care system was no sanctuary. She became a pinball, bouncing from house to house, never settling long enough to call anywhere home. Some families simply didn’t know what to do with a girl like her. Others, once they realized what she was, saw her as a threat—someone who needed to be kept away from their children. Names blurred together, places faded into half-remembered rooms and faces. But there were some homes that remained sharp-edged in her memory, places where she kept her bedroom door locked at night, her back braced against the thin wood.

    Unfortunately, locked doors didn’t always keep the monsters at bay. She learned to listen for heavy footsteps in the hallway, to breathe slow and shallow when the shadows passed beneath her door. But no matter what they did, they would never change who she was. Her identity was a light she kept tucked inside, a flame they could never reach.

    By the time she aged out of the system, she was determined. She refused to be a victim. Despite everything—the moves, the broken promises, the nights spent bracing against locked doors—she graduated high school with some of the best grades in her class. Every test passed, every assignment completed felt like a quiet rebellion, proof that the world hadn’t crushed her.

    When she started college, her vision for the future was already clear. She had one goal: to become the social worker she never had—the kind who listened, who understood, who saw kids like her and didn’t try to change them. Most of the social workers she had known had dismissed her identity, brushing off her truth with tired platitudes. She remembered the patronizing smiles, the way they told her she just hadn’t met the right boy yet. As if her existence was a phase that needed correcting. As far as she was concerned, men had never done anything but try to break her.

    She didn’t need them. She didn’t need biological children, either. There were already too many kids lost in the foster care system, too many who had been thrown away like she had. Her path forward was clear—help as many of them as she could, offer the kind of safety and acceptance she had never known.

    Kindred Flames

    From the start, there had been something magnetic about Janis—something more than her boldness in the classroom or the quiet certainty that seemed to follow her like a shadow. It was in the way she held space for others, how her voice could soften a sharp room, how her laughter felt like warmth in the winter. She had a way of seeing people, of making them feel heard, even in a world that so often turned its back on those who didn’t fit the mold.

    She learned quickly that Janis’s courage wasn’t just for show. It was rooted in lived experience, in a childhood where acceptance had come slowly, edged with discomfort and caution. Janis had known what it was like to feel out of place in her own home, to love deeply while treading carefully. But instead of turning inward, she had opened herself up—her empathy a quiet rebellion against the world’s harshness.

    When they sat together on the library steps, books between them and the world moving on without notice, Janis would speak about her dreams of teaching. She wanted to create classrooms where every child, regardless of ability, felt valued. Where no one had to fight to be seen. Her vision was vivid—schools with sensory-friendly spaces, lesson plans that adapted to each child’s needs, and a curriculum that celebrated differences instead of hiding them.

    She would listen, captivated by Janis’s passion, the way her hands moved when she spoke, painting the air with possibilities. It wasn’t just what Janis wanted to do—it was the way she believed it could be done. It was a hope without edges, boundless and real.

    It wasn’t long before those quiet conversations turned into shared action. They volunteered together, tutoring kids after school and organizing supply drives for underfunded classrooms. They stood side by side at protests, their hands entwined, voices raised in unison. There were late nights spent crafting posters, cups of coffee going cold as they planned ways to make a difference. Every small victory—a kid passing a test, a teacher agreeing to try a new method—felt monumental because it was a step toward the world they wanted to build.

    Over time, admiration deepened into something more. What began as a friendship grounded in shared purpose bloomed into love, each moment layering over the last. It felt inevitable, like gravity, like finding a home you didn’t realize you had been searching for. Their love became its own kind of activism—a testament to the idea that creating safe spaces started within the walls of their own hearts.

    Through it all, Janis remained a beacon. She wasn’t perfect—no one was—but her imperfections only made her more real. She stumbled, had bad days, doubted herself, but she never stopped trying. She never lost the spark that had drawn her forward in that classroom all those years ago. And as their lives intertwined, she felt the weight of something she had only glimpsed before—a life where love and purpose walked hand in hand, where building something good was as simple and as complex as holding on to each other and refusing to let go.

    Building a Home

    After graduation, she and Janis moved into a small, one-bedroom apartment. It wasn’t much—cramped and drafty with mismatched furniture—but it was a start. They spent weekends sketching floor plans for their future home, a place where every child, regardless of ability, could find safety They dreamed of wide doorways, roll-in showers, and spaces designed with love and intention. Each step forward—every saved dollar, every completed foster parent class—was a brick laid in the foundation of the life they were building together.

    Together, they would build a home where every child they welcomed felt seen, where love was a promise kept and never taken back. And through it all, that old, stubborn certainty remained—a light they had carried through every shadow, one they now shared with each child who walked through their door.

    It wasn’t easy. Even though they could finally marry, love was not enough to erase the lingering shadows of prejudice. In many parts of the country—places like where she grew up—being in an “untraditional” relationship still barred them from adopting children. The laws may have changed, but minds hadn’t always followed.

    So they did what they had always done: they moved forward, together. They left behind familiar streets and old ghosts, settling in a more welcoming state where their dream of building a family could become a reality. 

    They spent long evenings talking about what they wanted their home to look like, what kind of parents they hoped to be. They both knew they wanted kids, but adoption had its limits. It might mean only helping a few children, but fostering—fostering had no ceiling. There were always kids in need of a safe place, a soft landing in the midst of turmoil.

    They decided to open their doors wide. The choice was never about filling a void in their own lives but about offering a refuge to children who had none. They wanted to help the kids who might not fit easily into other homes—the ones with disabilities, those who identified as LGBTQ, the ones too often left behind. It was a promise to the children they once had been, to right the wrongs of their own pasts.

    Janis’ story, like hers, was tangled with loss and longing. When they met in college, Janis had only recently come out to her parents. While Janis’ family had known other LGBTQ people, acceptance came haltingly, edged with discomfort. Their conversations were strained, the kind where words could turn into weapons without warning. But through the pain of those interactions, Janis’ resolve only grew stronger. She had learned early on how to hold space for both love and disappointment, a skill that would later help them create a home where every child felt wanted.

    Determined to break the cycle, they approached the fostering process with the same conviction they had brought to everything else. They completed the paperwork, opened their home for in-depth interviews, and showed the caseworkers the world they had built—one filled with warmth and intention. By then, they were already established members of their community. They had friends and neighbors who saw them not as an exception but as an example of what family could mean. Gathering the necessary references was effortless, a testament to the lives they had touched just by being themselves.

    When their approval finally came through, it was more than just a certification—it was an affirmation of everything they had fought for. They had created a home where love wasn’t conditional, where children of all kinds could find safety and acceptance. It was the start of something bigger than either of them had imagined, the first step in a journey that would stretch across decades and fill their home with the sounds of laughter, healing, and hope.

    Once they were approved as foster parents, all they had to do was wait. They didn’t have to wait long. One evening, as the sun sank below the horizon, they sat together on the couch, watching the highly anticipated Ellen relaunch. Their cozy, single-level home was filled with the warmth of laughter and the comfort of familiar voices. The house had been designed with intention—wide doorways, barrier-free bathrooms, and low countertops—making every space accessible to all, regardless of ability. Their home was more than just a shelter; it was a promise that every child who came through their door would feel seen, safe, and welcomed.

    The Call That Changed Everything

    When the phone rang, they shared a glance, both knowing that this call could change everything. The social worker explained that a young child with spina bifida needed a temporary placement. The courts were still determining if the child’s parents were fit to care for them. When the child arrived, their small frame and wary eyes told more of the story than words ever could. The social worker quietly shared the details—malnourishment, a severe diaper rash, and a urinary tract infection. Signs of neglect sat heavily between them, unspoken but undeniable.

    Taking gentle steps forward, they led the child inside, the smooth transition from the ramp outside to the hardwood floors a small but meaningful comfort. They moved slowly, guiding the child through the open spaces of their home, showing them that nothing here would be a barrier. The bathroom was warm and welcoming, with a roll-in shower and grab bars within reach. Soft towels were stacked neatly, and bubble bath soaps lined the tub’s edge.

    They knelt to the child’s level, explaining every step, letting them set the pace. It was important that the child felt safe and in control—something that had likely been rare in their young life.

    When asked if they’d ever had a bubble bath, the child shook their head. So they pulled out all the different bubble bath soaps they had, letting the child choose their favorite scent. The small act of choice brought a hint of light to the child’s face. Carefully, they helped the child out of their soiled clothes, but when one of them moved to put the clothes into a trash bag—for safekeeping—the child’s expression crumpled. It took a few soft-spoken assurances to explain they weren’t throwing anything away, just keeping the clothes safe.

    When the soiled pull-up was removed, the extent of the rash became apparent. Angry red skin, raw and beginning to break down. They felt a pang of grief and anger, but they knew this moment wasn’t about them. It was about this child, about showing them that love could be gentle.

    They slowly lowered the child into the warm bath, the water lapping gently against raw skin, a soft hiss of pain shared in silence. The scent of lavender bubbles curled through the air, a tender counterpoint to the child’s wary expression.

    After making sure the child was okay, they stepped out of the room to give them a few minutes of privacy. They hadn’t even fully closed the door before a small voice called them back.

    Reassuring the child, they asked if they wanted help cleaning up. The child’s face brightened, a fragile hope peeking through the layers of fear. Taking turns, they gently washed away the dirt and pain, moving slowly, following the child’s lead. When it came time to clean the rash, they explained that it might sting but that it was necessary to help the skin heal. The child nodded, their small hands clutching the sides of the tub, their trust a precious and fragile thing.

    In one of the many bedrooms they had prepared, they had set out clean pajamas and a fresh pull-up. The room was dinosaur-themed, with green walls and blankets patterned with prehistoric creatures. The full-sized bed looked like a nest of safety, a world away from the chaos the child had left behind. When the child wheeled into the room and saw the dinosaur pajamas, their face lit up. The joy on the child’s face mirrored the joy in their own hearts, a quiet moment of connection.

    As they helped the child get dressed, they asked if they were hungry. The child mentioned spaghetti, a dish that reminded them of home—of the love they had felt when their mom and grandma cooked together. It was a memory soaked in warmth, a thread of happiness they could build on. Without hesitation, the two women set to work in the kitchen. The open floor plan allowed the child to watch as they cooked, the smell of browning hamburger and simmering tomato sauce filling the house, wrapping around them like a hug.

    When they called the child to the table, the sight of the steaming bowl of spaghetti brought tears to their eyes. The women served small portions, understanding that trust was built slowly, in careful bites and soft words. To their delight, the child devoured two full servings, their appetite a hopeful sign.

    As bedtime approached, they guided the child back to the dinosaur-themed room, keeping the lights dim and the voices soft. They could see the nervousness in the child’s posture—how their small hands gripped the armrests of their wheelchair, how their eyes darted around the room. Gently, they reassured the child that they were safe here, that nothing bad would happen.

    They asked if the child wanted a stuffed animal to sleep with. The child’s eyes widened with wonder. They mentioned a dinosaur toy left behind in the rush to leave their home. Leading them to a collection of stuffed animals, the child carefully selected a blue tyrannosaurus rex, promptly naming it “Roar.”

    With the nightlight on and Roar tucked under a small arm, the child settled into bed. They barely had time to pull the blanket up before the child drifted off, the deep, healing sleep of a child finally safe. The two women stood in the doorway, watching over this tiny, brave soul.

    They knew they couldn’t fix everything. They couldn’t erase the pain or make up for the lost years. But they could give this child a moment of peace, a chance to breathe without fear. And as they stood there, hands clasped and hearts full, they knew that every step of their journey had led them to this moment—to this small, sleeping child who deserved the world.

    The Next Chapter

    The days turned into weeks, and the weeks into months. The world outside had slowed to a crawl as the global pandemic forced everyone indoors, but within their small, accessible home, life continued to bloom. There were no trips to playgrounds or family outings, but they found comfort in the simple things—marathon sessions of their favorite TV shows, puzzles and board games spread out on the dining room table, and the warmth of shared laughter. The women created new routines, folding stability into the unpredictable days. The child, who had once been so wary, now moved through their home with an ease that felt like a small miracle.

    When the long-delayed court date finally arrived, the women and the child sat together in front of the computer screen, the virtual courtroom a reminder of how much the world had changed. The child had dressed up for the occasion, wearing their favorite dinosaur T-shirt under a button-up shirt. They clutched Roar, the blue tyrannosaurus rex, tightly in their lap, a quiet anchor in a sea of unknowns.

    But neither the mother nor the father showed up to the hearing. The empty squares on the screen, marked only by muted microphones and silent names, felt like a door quietly closing. The child’s shoulders slumped, their expression a mix of sadness and resignation. The women exchanged a look, a wordless conversation passing between them.

    When the session ended, they wrapped the child in a hug, whispering reassurances that this wasn’t the end—just a new beginning. As they sat together, the women felt a spark of possibility. There was an opportunity here, not just to provide a temporary home but to become a forever family.

    After the hearing, they reached out to the social worker, carefully expressing their interest in adoption. They spoke about how the child had become a part of their family, how their days felt incomplete without the small sounds of their wheelchair rolling through the hallways, without the bedtime stories and quiet moments of connection.

    The social worker listened, her expression softening as she took in their words. She agreed that the child had thrived in their care and promised to reach out to the judge to explore the possibility of turning this foster placement into a permanent adoption.

    As they hung up the call, the women sat in the quiet of their living room. The house, filled with so many memories, seemed to hold its breath. They knew that nothing was certain, but they also knew that love had already made them a family. The legalities would follow. For now, they continued to do what they had always done—love, nurture, and hope.

    A Forever Family

    The judge thought the adoption couldn’t happen fast enough. As they read through the case notes, a clear picture emerged: the child was thriving in the women’s care. They had made every medical appointment, ensured a balanced diet, and watched as the child’s once frail frame slowly filled out with health. Under their roof, the child had found not only stability but also joy—something that had been painfully absent from their early years.

    The judge’s concern deepened when reviewing the repeated absence of the biological parents. This was not the first missed court date, and the silence on their end spoke volumes. Even if the parents reappeared, there were serious doubts about their ability to provide the environment the child needed to continue thriving. Neglect had left its mark, not just physically but emotionally, and the judge knew that uprooting the child now could undo all the progress they had made.

    As far as the judge was concerned, the biological parents had relinquished their rights when they had chosen absence over action—not only in their care for the child but in failing to show up when it mattered most. The court had a duty to protect the best interests of the child, and all evidence pointed to the women’s home as the safest, most nurturing place for them.

    With a few signatures and a lot of paperwork, the judge’s gavel came down with a soft but certain thud—an echo of finality, of forever. They left the courtroom hand in hand, the weight of those papers light compared to the promise they held.

    A Home for Many

    But for the women, this was only the beginning. Becoming parents had reinforced the fire within them to advocate for change. They had seen firsthand how difficult it could be for children with disabilities to find loving, permanent homes. They had witnessed how bias and outdated policies could keep loving families apart. So they took their story public, speaking out about the need for reform in the foster care and adoption systems.

    They began volunteering with organizations that supported disabled and LGBTQ+ youth, using their voices to amplify those who often went unheard. They shared their journey at community meetings, advocating for more accessible housing, inclusive school programs, and better support for foster families. They hosted workshops, taught others how to create homes that were not only accessible but welcoming, and mentored new foster parents, showing them how to build trust with children who had experienced trauma.

    Their home became a haven not just for the child they had adopted but for many others who needed short-term respite or emergency care. They remained licensed as foster parents, always keeping an extra bed ready. Each child who came to stay with them left with a suitcase full of clothes, toys, and a promise that they would always carry a piece of their home in their hearts.

    And through it all, the child they had adopted continued to grow—stronger, braver, and more confident each day. They joined their moms in their advocacy work, sharing their own story when they felt ready, standing as proof of what love and stability could do. Together, they became a voice for change, a living example of how family could be built from compassion and choice, and how every child deserved a safe place to call home.

    Their activism for children had only just begun with that first adoption. Over the many years of fostering, they had countless children walk or roll through their door. Some stayed only for a night or two, finding a safe harbor in the storm of their lives. Others, like their first child, stayed forever, their temporary bed becoming a permanent part of the home. No matter how long they stayed, every child who crossed their threshold left knowing they were loved and supported.

    Their home became a sanctuary, a place where kids could ask questions without fear, where every holiday meant a seat at the table, and every bedtime ended with whispered reassurances and soft nightlights casting gentle shadows. Over the years, they hosted birthday parties for children who had never blown out candles before, celebrated report cards, and cheered on milestones —both big and small.

    Over time, they adopted four children, but two stood out most vividly in their memories. One was a non-binary youth, whose parents struggled to understand what being non-binary meant and tried to make them conform to their birth sex. When that didn’t work, they essentially said, ‘We can’t handle this type of non-conforming behavior,’ and gave them up to the state. They learned sign language to better communicate with a deaf child whose parents had given them up for adoption because they could not cope with having a non-hearing child. 

    They made additional modifications to their home to accommodate other children who had varying levels of disability, always maintaining as much of a warm and welcoming atmosphere as possible, despite some of the medical-grade equipment they had in the home.

    A Legacy of Love

    Opening her eyes after drifting through the memories, she struggled to remember the exact number of lives they had touched. She smiled faintly, knowing the number wasn’t what mattered. In her heart, she knew it was easily over a hundred children who had found safety and love within their walls. Some still sent holiday cards or called on Sundays, their voices echoing through the same halls where they once felt safe enough to simply be themselves. Others had grown up and moved on, but pieces of them remained—the pencil lines marking heights on the bathroom doorframe, colorful handprints on the garden wall, and names carefully carved into the bench that lined the dining room.

    Their first child went on to follow in both of their mothers’ footsteps, becoming not only a social worker and an educator but also a passionate advocate for all children in the foster care system. They helped raise funds to start a group of foster homes specifically designed for disabled and LGBTQ youth, aptly named ‘Next Chapter Homes’—a legacy that she and Janis had only dreamed of when they first sketched floor plans on the back of old notebooks in their drafty first apartment. Proof that love, when shared freely, could outlast a lifetime.

    They had fostered right up until the moment she received her terminal diagnosis. Even then, their focus remained on the children. They made sure every child in their care transitioned to new homes with as much love and care as possible. They spoke to each child honestly, explaining that sometimes even the strongest love stories had to change shape.

    She had no regrets. Her life had been filled with the kind of love she had once only dreamed of as a child. She thought of their first apartment—the drafty one-bedroom with thin walls and a kitchen table that wobbled if you leaned too hard. Even then, they had imagined a home filled with love and intention. What started in that tiny space, with whispered dreams and sketched blueprints, had blossomed into a sanctuary where every child could find safety and warmth. The home they built together had grown, but the love at its foundation had never wavered.

    The home they had built would remain a refuge, a testament to what was possible when love was not just a feeling but an action, a promise kept. Their home would remain, a lighthouse for those still finding their way through the storm. It would always be that rock that so many children over the years had come to depend on.

    Each room held echoes of laughter and healing, each wall painted with intention. What they had created was more than just a shelter—it was a legacy of love and acceptance that would continue to guide those who needed it most. The new children who found their way here would add their own stories to the pencil-marked doorframes, proof that love could stretch across generations.

    The Final Breath

    She wanted to go quietly, slipping away on the gentle current of her memories, leaving only peace behind. Janis, still cradled in the comfort of their home, continued to sleep, surrounded by the echoes of a life well-lived. When Janis awoke to the gentle morning light, she would carry forward the love they had always shared, now woven into every corner of their home.

    She drew in a final, slow breath, the air warm and steady in her chest, a quiet ember of life glowing soft and low. She held it know it was to be her last. It also seemed as if the house they had built together was holding its breath right along with her as the house all of a sudden because still and calm. 

    As it slipped from her lips, so gentle it was almost a sigh, a serene stillness filled the room. Her face remained soft, a smile resting there, as if she had simply drifted into a sweet dream.

    Outside, the first light of morning crept through the window, pooling around the room, brushing against the soft curve of her smile and the worn edges of the paperback in her wife’s hand. The house remained hushed, as if honoring her wish for quiet. 

    Outside the light caught on the colorful handprints on the garden wall and in the dinning room the names carved into the old bench, each a memory pressed into wood and paint. It was a new day—a continuation of the legacy she had helped build. 

    And somewhere, in the quiet of a child’s safe sleep or the joy of a new home found, the light she had carried through shadows into each child’s story remained—steady as a lighthouse beam, unwavering. A glow that would burn on, soft and endless, a promise etched into the walls of their home and into the hearts that had found refuge there.

  • Kalo’s Ninth Life: A Cat’s Perspective on Dogs and Destiny

    Kalo’s Ninth Life: A Cat’s Perspective on Dogs and Destiny

    Dogs—you can’t live with them, and you can’t live without them.

    Kalo the cat had been living with Surley for over a year now, ever since the silly human on wheels brought the dog home. From the moment Surley arrived, Kalo knew he was going to have to put up with this big, clunky creature.

    The Dog Problem

    This wasn’t the first dog Kalo had to endure. The one before, Dempsey, had been just as bad—loud, clumsy, and completely unaware of personal space. When Dempsey was gone, Kalo had the house to himself for a blissful year, but then Surley arrived, shattering his peace. Dogs never seemed to learn. They stomped around without watching where they were going, their massive paws a constant threat. And when they got excited, whatever few brain cells they had seemed to vanish entirely.

    From the very first visit, Kalo knew Surley would be trouble. This dog was unlike any he’d seen before. Yes, he seemed like a better working dog than Dempsey, but he always had something in his mouth—his favorite blue turtle, a bone, or whatever else he could find. Kalo feared the day Surley might decide he looked like a chew toy.

    Surley also loved playing fetch. The humans would throw almost anything, and the dog would chase it. If the ball bounced, Surley would leap into the air and catch it mid-flight. Watching Surley’s obsession with fetching gave Kalo an idea—one that could rid him of the dog once and for all.

    Putting the Plan into Action

    The human who frequently stepped on Kalo was gone for the day. Good riddance. That one constantly yelled at him for being on the table or getting in the way. What the human didn’t realize was that Kalo was actively working on getting rid of him, too. The human made him earn his tiny can of wet food every morning. The audacity.

    With that human gone, it was just Kalo, Surley, and the human on wheels. That human never left Surley home alone with Kalo—not for long, anyway. Either Surley was with him, or he was locked away in what Kalo called doggy jail.

    Kalo suspected the human knew the truth: if given the chance, Kalo would absolutely take out the dog. The only time he ever left the two alone was when he had to run downstairs for a quick errand.

    Today was that day.

    As the human wheeled out of the apartment to retrieve a package (hopefully something for him for once), Kalo put his plan into motion. The window was open, and the weather was nice. Surley’s ball, recently used in another endless round of fetch, sat conveniently on the coffee table.

    Perfect.

    Kalo batted the ball with casual interest, knowing it would grab Surley’s attention. The dog, ever the fool, perked up immediately. Finally, the cat wants to play!

    Kalo knocked the ball toward the window.

    Surley launched after it.

    The ball hit the window screen and tumbled through. Just as Kalo had predicted, the dumb dog lunged after it without hesitation.

    The Moment of Truth

    For a moment, time seemed to freeze. Surley’s goofy, horrified face was suspended in midair, just like those silly cartoons with the fast bird and the clueless coyote. His paws flailed, scrabbling against empty air. Then, instinct kicked in. He twisted just in time to catch the window sill with his front paws, his back legs kicking desperately.

    Kalo sat on the coffee table, tail twitching, watching Surley struggle. “This is it. No more being stepped on. No more drool-covered toys. No more giant oaf knocking over everything in his path.”

    Then something strange happened. A feeling Kalo had never experienced before crept in.

    Guilt.

    He remembered the humans’ sadness when Spaz, the other cat, had gotten sick. He remembered how heartbroken the human on wheels had been when Dempsey passed away. For an entire year, the human had been lost in grief. Kalo had felt their sorrow, and though he’d never admit it, he had wished there was a way to make it go away.

    If Surley fell, the humans would feel that same pain all over again.

    Kalo groaned. “This is going to cost me.

    Kalo’s Ninth Life: A Cat’s Sacrifice

    Cats had nine lives. Humans joked about it, but if they only knew the truth. It was rare for a cat to use one, but this situation called for something drastic.

    Kalo slowed his breathing, calming his heart rate until the world itself seemed to slow. Then, he reached deep within himself, feeling the delicate thread of time. He grasped one of his lives and began unraveling the ball of fate.

    Even with his eyes closed, he could feel what was happening. Time reversed. The ball flew backward through the air, re-entering the apartment. Surley’s paws moved in reverse, dragging him safely back inside. When Kalo opened his eyes, Surley was sitting next to him, looking slightly dazed but unharmed.

    Exhausted, Kalo stumbled off the coffee table. Right before he passed out, he felt Surley curl around him, warm and protective, just as the door opened and the human returned.

    As Kalo drifted into unconsciousness, one thought crossed his mind.

    Maybe the dog wasn’t so bad after all.


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  • How Policy Changes Could Impact Disability Support Services

    How Policy Changes Could Impact Disability Support Services

    I have been receiving support services through personal care assistant (PCA) hours for over twenty years. Over this time, I have worked with many different PCAs, each bringing unique skills and compassion to their work.

    My first PCA, Colleen, was a warm face every morning and evening. She helped to keep my apartment looking clean. She made sure I had plenty of food in the refrigerator. I could easily grab it after coming home from a long day of college classes. She had been a PCA for a long time and knew the ins and outs. She even helped me find resources to cover medical supplies. Until then, I had been paying for these out of my own pocket.

    Towards the end of our two years working together, I was finishing my two-year degree. We grew close and became good friends. I don’t keep in touch as much as I’d like. However, I think about her from time to time. I thank her for everything she did.

    My current PCA, Jason, and I came to work together in a unique way. He has been a longtime friend and now current partner. When I could no longer afford to cover the cost of my apartment, I asked him to move in.

    He saw firsthand the struggles I had keeping staff. He was there when a PCA quit on her first day. She quit because she saw we had a cat. We explicitly told the agency that any person who works in my home must be okay with cats.

    Jason was there when the staff would show up late or not show up at all. He often filled in without being paid. I was getting frustrated with the issues. He needed the extra cash. So I asked him to officially work with me, and we’ve been doing great ever since.

    These experiences highlight the invaluable role PCAs play in my life. They make it possible for me to live independently. I can focus on the things that truly matter. These hours have allowed me to live independently and use my energy in meaningful ways.

    The Importance of Personal Care Assistants (PCAs)

    Before I had PCA hours, I had to complete a vast majority of the housework on my own. For most people, this is not a huge problem, but for me, some of these tasks can be extremely draining.

    The Challenges of Daily Tasks Without PCA Support

    Take laundry, for example. Before I had PCA services, I had to drag the laundry basket to the washing machine down the hall. Then, I struggled to load a basket’s worth of clothes into the machine. Once it was finished, I had to stand next to the machine to unload the clothes into the dryer. The easiest part was getting them out of the dryer and back into the basket. Then came the long drag back to my apartment. By the time I got everything folded and put away, I was ready for a nap. Many times, I would get the clothes washed and dried. However, they might have to wait to be folded. I had more pressing tasks, such as getting groceries for the following week.

    Out of all the household tasks, grocery shopping was by far the hardest. This was before online ordering and home delivery became widely available. I would have to take the paratransit to the local grocery store. I could only purchase what I could carry on my lap. If paratransit was not an option, I would wheel my manual wheelchair to the store.

    By the time I got back home, I was exhausted. I would often develop blisters on my hands. This happened even though my dad gave me a pair of fingerless gloves to use.

    My family would sometimes make the hour-and-a-half drive to see me. Most of the time, they would also take me to the store. This allowed me to buy a large supply of food.

    Now that I have PCA hours, I worry about losing them. If they were cut back, it would significantly impact my overall well-being. However, I do not foresee this happening for me.

    Unlike many who rely on PCA hours, my PCA lives in the home with me. This means I do not have to worry about whether they will show up. I do not have to worry if the agency can find someone to fill in. This is important if the usual staff is unavailable.

    The Impact of Immigration Policies on Caregiver Availability

    Minnesota Star Tribune article highlights a critical issue. Minnesota relies on immigrant and refugee workers to provide essential care. These individuals care for those with disabilities, chronic illnesses, and the elderly.

    A 2024 study by the Minnesota Department of Employment and Economic Development states an important fact. Over 20% of direct support professionals in the state are immigrants.

    The demand for home health aides and personal care assistants is projected to grow by 25% over the next decade. However, workforce shortages persist. High turnover rates exceeding 50% annually contribute to these shortages.

    Many current and potential caregivers are immigrants. They come from countries such as Liberia, the Democratic Republic of the Congo, Ethiopia, and Somalia. Restricting new entrants from these regions could severely impact the availability of qualified personnel in the caregiving sector. It would worsen the existing workforce crisis. This could leave thousands of individuals without critical support. Many individuals would not receive essential care for disabilities, chronic illnesses, and the elderly.

    These direct support professionals are indispensable in delivering daily assistance and ensuring the well-being of vulnerable populations. However, recent federal immigration policies, including increased deportations and the suspension of refugee resettlement, pose significant challenges to this workforce.

    Medicaid Waiver Cuts and the Risk to Independent Living

    Another Minnesota Star Tribune article highlights concerns among Minnesotans with disabilities. These concerns are about proposed state budget cuts to Medicaid waivers. These waivers are essential for funding services that enable individuals to live independently. They cover costs for personal care assistants, specialized equipment, and transportation not typically covered by insurance.

    Governor Tim Walz has proposed capping annual inflationary increases for these waivers at 2%. This is a significant reduction from the current 6% growth rate. This proposal aims to address a looming budget deficit projected for 2028. The shortfall is partly due to higher-than-anticipated Medicaid spending on disability services.

    However, advocates argue that such cuts could compromise the quality of care. They could force individuals into institutional settings. This would reverse progress made in supporting independent living for people with disabilities.

    “My brother sacrificed his limbs to the caregiver shortage”

    Real-Life Consequences of the Caregiver Shortage

    These staffing shortages are more than just an inconvenience for those who rely on these services. They can be a matter of life and death. In the fall of 2022, Dennis Prothero lost his legs due to a shortage of care workers.

    Paralyzed from an accident in 2004, Dennis required assistance with daily living skills. In the summer of 2022, he lost his vital caregiving support. As a result, he was forced to spend 24 hours a day in his wheelchair. The constant pressure led to severe sores. These sores went untreated due to the lack of available staff. Ultimately, this resulted in an emergency amputation to stop the spread of infection. Dennis’s older sister, Gayle King, told the Minnesota Star Tribune, “My brother sacrificed his limbs to the caregiver shortage.”

    Unhappy Ending

    Tragically, this was not the end of Dennis’s story. He was weakened by surgery and a prolonged hospital stay. Then he contracted bacterial pneumonia and COVID-19. These illnesses ultimately claimed his life in early December 2022. He was 68 years old.

    Dennis was more than just a statistic. He was a son, a brother, a father, and a friend to many, including me. We never met in person. However, we chatted online over the years. We bonded over our shared love of photography, cars, and our service dogs from Can Do Canines.

    What Can Be Done to Address These Issues?

    If these changes at both the state and federal levels were enacted, I would not likely be affected. I have live-in staffing. I do not rely on any of the programs the governor is looking to trim. However, I know that countless friends and loved ones could be affected.

    Changes are necessary to ensure financial sustainability. However, those changes should not come at the cost of some of our most vulnerable citizens.

    Sources